{ "api_version": "1", "request": { "url": "https://clinicaltrialsfind.com/api/v1/search.json?condition=DICER1+Syndrome", "query": { "condition": "DICER1 Syndrome" }, "page_size": 10 }, "pagination": { "page": 1, "page_size": 10, "total_count": 5, "total_pages": 1, "next_page_url": null, "previous_page_url": null }, "source": "remote", "last_synced_at": "2026-06-25T16:05:33.915Z", "attribution": "Data derived from public ClinicalTrials.gov records. The official record at https://clinicaltrials.gov/ remains the source of truth for current availability, contacts, and full study details.", "notes": [ "This endpoint exposes only public summary fields — no participant contact emails, phone numbers, or scraped investigator contact details.", "For contact information and full protocol detail, follow each trial's `official_url` to the ClinicalTrials.gov record.", "This API is a navigational aid. It does not provide medical advice, eligibility determinations, or compensation guarantees." ], "trials": [ { "nct_id": "NCT03050268", "title": "Familial Investigations of Childhood Cancer Predisposition", "overall_status": "RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Acute Leukemia", "Adenomatous Polyposis", "Adrenocortical Carcinoma", "AML", "BAP1 Tumor Predisposition Syndrome", "Carney Complex", "Choroid Plexus Carcinoma", "Constitutional Mismatch Repair Deficiency Syndrome", "Diamond-Blackfan Anemia", "DICER1 Syndrome", "Dyskeratosis Congenita", "Emberger Syndrome", "Familial Acute Myeloid Leukemia", "Familial Adenomatous Polyposis", "Fanconi Anemia", "Familial Cancer", "Familial Wilms Tumor", "Familial Neuroblastoma", "GIST", "Hereditary Breast and Ovarian Cancer", "Hereditary Paraganglioma-Pheochromocytoma Syndrome", "Hodgkin Lymphoma", "Juvenile Polyposis", "Li-Fraumeni Syndrome", "Lynch Syndrome", "MDS", "Melanoma Syndrome", "Multiple Endocrine Neoplasia Type 1", "Multiple Endocrine Neoplasia Type 2", "Neuroblastoma", "Neurofibromatosis Type 1", "Neurofibromatosis Type II", "Nevoid Basal Cell Carcinoma Syndrome", "Non Hodgkin Lymphoma", "Noonan Syndrome and Other Rasopathy", "Overgrowth Syndromes", "Pancreatic Cancer", "Peutz-Jeghers Syndrome", "Pheochromocytoma/Paraganglioma", "PTEN Hamartoma Tumor Syndrome", "Retinoblastoma", "Rhabdoid Tumor Predisposition Syndrome", "Rhabdomyosarcoma", "Rothmund-Thomson Syndrome", "Tuberous Sclerosis", "Von Hippel-Lindau Disease" ], "interventions": [], "intervention_types": [], "sponsor": "St. Jude Children's Research Hospital", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": null, "maximum_age": null, "sex": "ALL", "summary": "Not listed" }, "enrollment_count": 1500, "start_date": "2017-04-06", "completion_date": "2037-03-31", "has_results": false, "last_update_posted_date": "2026-06-17", "last_synced_at": "2026-06-25T16:05:33.915Z", "location_count": 1, "location_summary": "Memphis, Tennessee", "locations": [ { "city": "Memphis", "state": "Tennessee" } ], "official_url": "https://clinicaltrials.gov/study/NCT03050268" }, { "nct_id": "NCT03382158", "title": "International PPB/DICER1 Registry", "overall_status": "RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Pleuropulmonary Blastoma", "Sertoli-Leydig Cell Tumor", "DICER1 Syndrome", "Cystic Nephroma", "Wilms Tumor", "Pineoblastoma", "Renal Sarcoma", "Nodular Hyperplasia of Thyroid", "Nasal Chondromesenchymal Hamartoma", "Ciliary Body Medulloepithelioma", "Neuroblastoma", "Pituitary Cancer", "Embryonal Rhabdomyosarcoma", "Ovarian Sarcoma", "Gynandroblastoma", "Thyroid Carcinoma", "Embryonal Rhabdomyosarcoma of Vagina (Diagnosis)", "Embryonal Rhabdomyosarcoma of Uterus (Diagnosis)", "Embryonal Rhabdomyosarcoma of Cervix" ], "interventions": [], "intervention_types": [], "sponsor": "Children's Hospitals and Clinics of Minnesota", "sponsor_class": "OTHER", "healthy_volunteers": true, "eligibility": { "minimum_age": "0 Minutes", "maximum_age": "100 Years", "sex": "ALL", "summary": "0 Minutes to 100 Years" }, "enrollment_count": 3400, "start_date": "2016-12-06", "completion_date": "2035-12-06", "has_results": false, "last_update_posted_date": "2025-01-30", "last_synced_at": "2026-06-25T16:05:33.915Z", "location_count": 1, "location_summary": "Minneapolis, Minnesota", "locations": [ { "city": "Minneapolis", "state": "Minnesota" } ], "official_url": "https://clinicaltrials.gov/study/NCT03382158" }, { "nct_id": "NCT01247597", "title": "DICER1-related Pleuropulmonary Blastoma Cancer Predisposition Syndrome: A Natural History Study", "overall_status": "RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Pleuropulmonary Blastoma", "Cystic Nephroma", "Ovarian Sertoli-Leydig Cell Tumors", "Ocular Medulloepithelioma", "Nasal Chondromesenchymal Hamartoma" ], "interventions": [], "intervention_types": [], "sponsor": "National Cancer Institute (NCI)", "sponsor_class": "NIH", "healthy_volunteers": true, "eligibility": { "minimum_age": "1 Month", "maximum_age": "99 Years", "sex": "ALL", "summary": "1 Month to 99 Years" }, "enrollment_count": 1500, "start_date": "2011-02-13", "completion_date": null, "has_results": false, "last_update_posted_date": "2026-06-24", "last_synced_at": "2026-06-25T16:05:33.915Z", "location_count": 2, "location_summary": "Bethesda, Maryland • Rockville, Maryland", "locations": [ { "city": "Bethesda", "state": "Maryland" }, { "city": "Rockville", "state": "Maryland" } ], "official_url": "https://clinicaltrials.gov/study/NCT01247597" }, { "nct_id": "NCT07005297", "title": "Clinical Genetics Branch Eligibility Screening Survey", "overall_status": "NOT_YET_RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Melanoma", "Li-Fraumeni Syndrome", "Pulmonary Blastoma", "Chordoma", "Congenital Bone Marrow Failure Syndromes", "Costello Syndrome", "Fanconi Anemia", "CFC Syndrome (CFCS)", "Legius Syndrome", "RASopathies" ], "interventions": [], "intervention_types": [], "sponsor": "National Cancer Institute (NCI)", "sponsor_class": "NIH", "healthy_volunteers": false, "eligibility": { "minimum_age": "1 Year", "maximum_age": "99 Years", "sex": "ALL", "summary": "1 Year to 99 Years" }, "enrollment_count": 1000, "start_date": "2026-06-30", "completion_date": "2036-01-01", "has_results": false, "last_update_posted_date": "2026-06-25", "last_synced_at": "2026-06-25T16:05:33.915Z", "location_count": 1, "location_summary": "Rockville, Maryland", "locations": [ { "city": "Rockville", "state": "Maryland" } ], "official_url": "https://clinicaltrials.gov/study/NCT07005297" }, { "nct_id": "NCT00565903", "title": "Elucidating the Genetic Basis of the Pleuropulmonary Blastoma (PPB) Familial Cancer Syndrome", "overall_status": "COMPLETED", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Pleuropulmonary Blastoma", "Cystic Nephroma", "Sertoli-Leydig Cell Tumor of Ovary", "Medulloepithelioma", "Embryonal Rhabdomyosarcoma of Cervix", "Goiter", "Sarcoma", "Pineoblastoma", "Pituitary Tumors", "Wilms Tumor" ], "interventions": [], "intervention_types": [], "sponsor": "Ashley Hill", "sponsor_class": "OTHER", "healthy_volunteers": true, "eligibility": { "minimum_age": "1 Day", "maximum_age": "95 Years", "sex": "ALL", "summary": "1 Day to 95 Years" }, "enrollment_count": 1247, "start_date": "2005-03", "completion_date": "2022-12-31", "has_results": false, "last_update_posted_date": "2023-03-01", "last_synced_at": "2026-06-25T16:05:33.915Z", "location_count": 1, "location_summary": "Washington D.C., District of Columbia", "locations": [ { "city": "Washington D.C.", "state": "District of Columbia" } ], "official_url": "https://clinicaltrials.gov/study/NCT00565903" } ] }