{ "api_version": "1", "request": { "url": "https://clinicaltrialsfind.com/api/v1/search.json?condition=Epidermolysis+Bullosa+Dystrophica%2C+Recessive", "query": { "condition": "Epidermolysis Bullosa Dystrophica, Recessive" }, "page_size": 10 }, "pagination": { "page": 1, "page_size": 10, "total_count": 31, "total_pages": 4, "next_page_url": "https://clinicaltrialsfind.com/api/v1/search.json?condition=Epidermolysis+Bullosa+Dystrophica%2C+Recessive&page=2&page_size=10", "previous_page_url": null }, "source": "remote", "last_synced_at": "2026-06-10T12:25:26.639Z", "attribution": "Data derived from public ClinicalTrials.gov records. The official record at https://clinicaltrials.gov/ remains the source of truth for current availability, contacts, and full study details.", "notes": [ "This endpoint exposes only public summary fields — no participant contact emails, phone numbers, or scraped investigator contact details.", "For contact information and full protocol detail, follow each trial's `official_url` to the ClinicalTrials.gov record.", "This API is a navigational aid. It does not provide medical advice, eligibility determinations, or compensation guarantees." ], "trials": [ { "nct_id": "NCT04917887", "title": "Long-Term Follow-up Protocol", "overall_status": "RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Dystrophic Epidermolysis Bullosa", "Recessive Dystrophic Epidermolysis Bullosa", "Dominant Dystrophic Epidermolysis Bullosa" ], "interventions": [], "intervention_types": [], "sponsor": "Krystal Biotech, Inc.", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "6 Months", "maximum_age": null, "sex": "ALL", "summary": "6 Months and older" }, "enrollment_count": 50, "start_date": "2021-05-25", "completion_date": "2028-05-25", "has_results": false, "last_update_posted_date": "2021-06-08", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 3, "location_summary": "Rancho Santa Margarita, California • Redwood City, California • Coral Gables, Florida", "locations": [ { "city": "Rancho Santa Margarita", "state": "California" }, { "city": "Redwood City", "state": "California" }, { "city": "Coral Gables", "state": "Florida" } ], "official_url": "https://clinicaltrials.gov/study/NCT04917887" }, { "nct_id": "NCT00904163", "title": "Characteristics of Adult Patients With Recessive Dystrophic Epidermolysis Bullosa", "overall_status": "COMPLETED", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Epidermolysis Bullosa Dystrophica" ], "interventions": [], "intervention_types": [], "sponsor": "Stanford University", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": null, "sex": "ALL", "summary": "18 Years and older" }, "enrollment_count": 13, "start_date": "2009-04", "completion_date": "2014-05", "has_results": false, "last_update_posted_date": "2014-05-16", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 1, "location_summary": "Stanford, California", "locations": [ { "city": "Stanford", "state": "California" } ], "official_url": "https://clinicaltrials.gov/study/NCT00904163" }, { "nct_id": "NCT01263379", "title": "Gene Transfer for Recessive Dystrophic Epidermolysis Bullosa", "overall_status": "COMPLETED", "study_type": "INTERVENTIONAL", "phases": [ "PHASE1", "PHASE2" ], "conditions": [ "Epidermolysis Bullosa Dystrophica", "Epidermolysis Bullosa" ], "interventions": [ { "name": "LZRSE-Col7A1 Engineered Autologous Epidermal Sheets", "type": "BIOLOGICAL" } ], "intervention_types": [ "BIOLOGICAL" ], "sponsor": "Abeona Therapeutics, Inc", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "13 Years", "maximum_age": null, "sex": "ALL", "summary": "13 Years and older" }, "enrollment_count": 12, "start_date": "2010-10-05", "completion_date": "2022-03-09", "has_results": true, "last_update_posted_date": "2023-08-22", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 1, "location_summary": "Redwood City, California", "locations": [ { "city": "Redwood City", "state": "California" } ], "official_url": "https://clinicaltrials.gov/study/NCT01263379" }, { "nct_id": "NCT04917874", "title": "A Long-term Treatment With B-VEC for Dystrophic Epidermolysis Bullosa", "overall_status": "COMPLETED", "study_type": "INTERVENTIONAL", "phases": [ "PHASE3" ], "conditions": [ "Dystrophic Epidermolysis Bullosa", "DEB - Dystrophic Epidermolysis Bullosa", "Recessive Dystrophic Epidermolysis Bullosa", "Dominant Dystrophic Epidermolysis Bullosa" ], "interventions": [ { "name": "Open Label Topical Beremagene Geperpavec (B-VEC)", "type": "BIOLOGICAL" } ], "intervention_types": [ "BIOLOGICAL" ], "sponsor": "Krystal Biotech, Inc.", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "2 Months", "maximum_age": null, "sex": "ALL", "summary": "2 Months and older" }, "enrollment_count": 47, "start_date": "2021-05-25", "completion_date": "2023-07-31", "has_results": false, "last_update_posted_date": "2024-04-09", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 6, "location_summary": "Rancho Santa Margarita, California • Redwood City, California • Coral Gables, Florida + 3 more", "locations": [ { "city": "Rancho Santa Margarita", "state": "California" }, { "city": "Redwood City", "state": "California" }, { "city": "Coral Gables", "state": "Florida" }, { "city": "Chicago", "state": "Illinois" }, { "city": "Cincinnati", "state": "Ohio" } ], "official_url": "https://clinicaltrials.gov/study/NCT04917874" }, { "nct_id": "NCT04491604", "title": "Ph 3 Efficacy and Safety of B-VEC for the Treatment of DEB", "overall_status": "COMPLETED", "study_type": "INTERVENTIONAL", "phases": [ "PHASE3" ], "conditions": [ "Dystrophic Epidermolysis Bullosa", "Recessive Dystrophic Epidermolysis Bullosa", "Dominant Dystrophic Epidermolysis Bullosa" ], "interventions": [ { "name": "Topical Beremagene Geperpavec", "type": "BIOLOGICAL" }, { "name": "Placebo", "type": "OTHER" } ], "intervention_types": [ "BIOLOGICAL", "OTHER" ], "sponsor": "Krystal Biotech, Inc.", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "6 Months", "maximum_age": null, "sex": "ALL", "summary": "6 Months and older" }, "enrollment_count": 31, "start_date": "2020-08-17", "completion_date": "2022-01-14", "has_results": true, "last_update_posted_date": "2023-02-17", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 3, "location_summary": "Rancho Santa Margarita, California • Stanford, California • Coral Gables, Florida", "locations": [ { "city": "Rancho Santa Margarita", "state": "California" }, { "city": "Stanford", "state": "California" }, { "city": "Coral Gables", "state": "Florida" } ], "official_url": "https://clinicaltrials.gov/study/NCT04491604" }, { "nct_id": "NCT06834035", "title": "Targeting Collagen VII Antibodies With IV IgG in Dystrophic Epidermolysis Bullosa", "overall_status": "RECRUITING", "study_type": "INTERVENTIONAL", "phases": [ "PHASE1", "PHASE2" ], "conditions": [ "Epidermolysis Bullosa", "Epidermolysis Bullosa Acquisita", "Dystrophic Epidermolysis Bullosa", "Recessive Dystrophic Epidermolysis Bullosa" ], "interventions": [ { "name": "Immunoglobulin G", "type": "BIOLOGICAL" } ], "intervention_types": [ "BIOLOGICAL" ], "sponsor": "M. Peter Marinkovich", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "6 Years", "maximum_age": null, "sex": "ALL", "summary": "6 Years and older" }, "enrollment_count": 8, "start_date": "2025-08-04", "completion_date": "2027-03", "has_results": false, "last_update_posted_date": "2026-05-05", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 1, "location_summary": "Redwood City, California", "locations": [ { "city": "Redwood City", "state": "California" } ], "official_url": "https://clinicaltrials.gov/study/NCT06834035" }, { "nct_id": "NCT05725018", "title": "A Phase 3b Study for the Treatment of Dystrophic Epidermolysis Bullosa (DEB) in New and Previously EB-101 Treated Patients", "overall_status": "ACTIVE_NOT_RECRUITING", "study_type": "INTERVENTIONAL", "phases": [ "PHASE3" ], "conditions": [ "Epidermolysis Bullosa", "Recessive Dystrophic Epidermolysis Bullosa", "RDEB" ], "interventions": [ { "name": "EB-101 Surgical application of RDEB wounds", "type": "BIOLOGICAL" } ], "intervention_types": [ "BIOLOGICAL" ], "sponsor": "Abeona Therapeutics, Inc", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "12 Months", "maximum_age": null, "sex": "ALL", "summary": "12 Months and older" }, "enrollment_count": 12, "start_date": "2023-04-02", "completion_date": "2025-09-30", "has_results": false, "last_update_posted_date": "2025-06-27", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 2, "location_summary": "Redwood City, California • Worcester, Massachusetts", "locations": [ { "city": "Redwood City", "state": "California" }, { "city": "Worcester", "state": "Massachusetts" } ], "official_url": "https://clinicaltrials.gov/study/NCT05725018" }, { "nct_id": "NCT01019148", "title": "Characteristics of Patients With Recessive Dystrophic Epidermolysis Bullosa", "overall_status": "RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Epidermolysis Bullosa Dystrophica" ], "interventions": [], "intervention_types": [], "sponsor": "Stanford University", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": null, "maximum_age": null, "sex": "ALL", "summary": "Not listed" }, "enrollment_count": 70, "start_date": "2009-11-10", "completion_date": "2029-12-31", "has_results": false, "last_update_posted_date": "2026-04-24", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 1, "location_summary": "Stanford, California", "locations": [ { "city": "Stanford", "state": "California" } ], "official_url": "https://clinicaltrials.gov/study/NCT01019148" }, { "nct_id": "NCT00533572", "title": "Recessive Dystrophic Epidermolysis Bullosa Screening for Possible Gene Transfer", "overall_status": "TERMINATED", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Epidermolysis Bullosa Dystrophica" ], "interventions": [], "intervention_types": [], "sponsor": "Stanford University", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": null, "sex": "ALL", "summary": "18 Years and older" }, "enrollment_count": 1, "start_date": "2007-08", "completion_date": "2008-08", "has_results": false, "last_update_posted_date": "2015-05-27", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 1, "location_summary": "Stanford, California", "locations": [ { "city": "Stanford", "state": "California" } ], "official_url": "https://clinicaltrials.gov/study/NCT00533572" }, { "nct_id": "NCT05843994", "title": "Artificial Intelligence Patient App for RDEB SCCs", "overall_status": "ACTIVE_NOT_RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Epidermolysis Bullosa Dystrophica" ], "interventions": [ { "name": "online survey", "type": "OTHER" } ], "intervention_types": [ "OTHER" ], "sponsor": "Northwestern University", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "12 Years", "maximum_age": null, "sex": "ALL", "summary": "12 Years and older" }, "enrollment_count": 20, "start_date": "2023-01-30", "completion_date": "2028-11-30", "has_results": false, "last_update_posted_date": "2026-02-03", "last_synced_at": "2026-06-10T12:25:26.639Z", "location_count": 1, "location_summary": "Chicago, Illinois", "locations": [ { "city": "Chicago", "state": "Illinois" } ], "official_url": "https://clinicaltrials.gov/study/NCT05843994" } ] }