{ "api_version": "1", "request": { "url": "https://clinicaltrialsfind.com/api/v1/search.json?condition=Facioscapulohumeral+Dystrophy", "query": { "condition": "Facioscapulohumeral Dystrophy" }, "page_size": 10 }, "pagination": { "page": 1, "page_size": 10, "total_count": 33, "total_pages": 4, "next_page_url": "https://clinicaltrialsfind.com/api/v1/search.json?condition=Facioscapulohumeral+Dystrophy&page=2&page_size=10", "previous_page_url": null }, "source": "remote", "last_synced_at": "2026-07-22T12:26:00.706Z", "attribution": "Data derived from public ClinicalTrials.gov records. The official record at https://clinicaltrials.gov/ remains the source of truth for current availability, contacts, and full study details.", "notes": [ "This endpoint exposes only public summary fields — no participant contact emails, phone numbers, or scraped investigator contact details.", "For contact information and full protocol detail, follow each trial's `official_url` to the ClinicalTrials.gov record.", "This API is a navigational aid. It does not provide medical advice, eligibility determinations, or compensation guarantees." ], "trials": [ { "nct_id": "NCT05548556", "title": "A Study to Evaluate RO7204239 in Participants With Facioscapulohumeral Muscular Dystrophy", "overall_status": "ACTIVE_NOT_RECRUITING", "study_type": "INTERVENTIONAL", "phases": [ "PHASE2" ], "conditions": [ "Facioscapulohumeral Muscular Dystrophy (FSHD)" ], "interventions": [ { "name": "Placebo", "type": "DRUG" }, { "name": "RO7204239", "type": "DRUG" } ], "intervention_types": [ "DRUG" ], "sponsor": "Hoffmann-La Roche", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": "65 Years", "sex": "ALL", "summary": "18 Years to 65 Years" }, "enrollment_count": 51, "start_date": "2023-02-07", "completion_date": "2026-10-23", "has_results": false, "last_update_posted_date": "2026-06-18", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 5, "location_summary": "Orange, California • Aurora, Colorado • Fairway, Kansas + 2 more", "locations": [ { "city": "Orange", "state": "California" }, { "city": "Aurora", "state": "Colorado" }, { "city": "Fairway", "state": "Kansas" }, { "city": "Baltimore", "state": "Maryland" }, { "city": "Richmond", "state": "Virginia" } ], "official_url": "https://clinicaltrials.gov/study/NCT05548556" }, { "nct_id": "NCT02766985", "title": "Rasch-analysis of Clinical Severity in FSHD", "overall_status": "COMPLETED", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Facioscapulohumeral Muscular Dystrophy" ], "interventions": [], "intervention_types": [], "sponsor": "University of Kansas Medical Center", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": null, "sex": "ALL", "summary": "18 Years and older" }, "enrollment_count": 44, "start_date": "2016-03", "completion_date": "2017-04-18", "has_results": false, "last_update_posted_date": "2018-04-12", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 2, "location_summary": "Kansas City, Kansas • Salt Lake City, Utah", "locations": [ { "city": "Kansas City", "state": "Kansas" }, { "city": "Salt Lake City", "state": "Utah" } ], "official_url": "https://clinicaltrials.gov/study/NCT02766985" }, { "nct_id": "NCT01931644", "title": "At-Home Research Study for Patients With Autoimmune, Inflammatory, Genetic, Hematological, Infectious, Neurological, CNS, Oncological, Respiratory, Metabolic Conditions", "overall_status": "COMPLETED", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "All Diagnosed Health Conditions", "ADD/ADHD", "Alopecia Areata", "Ankylosing Spondylitis", "Asthma", "Atopic Dermatitis Eczema", "Beta Thalassemia", "Bipolar Disorder", "Breast Cancer", "Celiac Disease", "Cervical Cancer", "Chronic Inflammatory Demyelinating Polyneuropathy", "Chronic Kidney Diseases", "Chronic Obstructive Pulmonary Disease", "Colon Cancer", "Colorectal Cancer", "Crohn's Disease", "Cystic Fibrosis", "Depression", "Diabetes Mellitus", "Duchenne Muscular Dystrophy", "Endometriosis", "Epilepsy", "Facioscapulohumeral Muscular Dystrophy", "G6PD Deficiency", "General Anxiety Disorder", "Hepatitis B", "Hereditary Hemorrhagic Telangiectasia", "HIV/AIDS", "Human Papilloma Virus", "Huntington's Disease", "Idiopathic Thrombocytopenic Purpura", "Insomnia", "Kidney Cancer", "Leukemia", "Lung Cancer", "Lupus Nephritis", "Lymphoma", "Melanoma", "Multiple Myeloma", "Multiple Sclerosis", "Myositis", "Myotonic Dystrophy", "Ovarian Cancer", "Pancreatic Cancer", "Parkinson's Disease", "Polycystic Kidney Diseases", "Prostate Cancer", "Psoriasis", "Psoriatic Arthritis", "Rosacea", "Scleroderma", "Sickle Cell Anemia", "Sickle Cell Trait", "Sjogren's Syndrome", "Skin Cancer", "Spinal Muscular Atrophy", "Systemic Lupus Erythematosus", "Thrombotic Thrombocytopenic Purpura", "Trisomy 21", "Ulcerative Colitis" ], "interventions": [], "intervention_types": [], "sponsor": "Sanguine Biosciences", "sponsor_class": "INDUSTRY", "healthy_volunteers": true, "eligibility": { "minimum_age": "18 Years", "maximum_age": "100 Years", "sex": "ALL", "summary": "18 Years to 100 Years" }, "enrollment_count": 17667, "start_date": "2013-07", "completion_date": "2024-04", "has_results": false, "last_update_posted_date": "2024-04-18", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 1, "location_summary": "Los Angeles, California", "locations": [ { "city": "Los Angeles", "state": "California" } ], "official_url": "https://clinicaltrials.gov/study/NCT01931644" }, { "nct_id": "NCT01437345", "title": "A Multicenter Collaborative Study on the Clinical Features, Expression Profiling, and Quality of Life of Infantile Onset FSHD", "overall_status": "COMPLETED", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Facioscapulohumeral Muscular Dystrophy" ], "interventions": [], "intervention_types": [], "sponsor": "Cooperative International Neuromuscular Research Group", "sponsor_class": "NETWORK", "healthy_volunteers": false, "eligibility": { "minimum_age": null, "maximum_age": null, "sex": "ALL", "summary": "Not listed" }, "enrollment_count": 53, "start_date": "2012-07", "completion_date": "2017-08", "has_results": false, "last_update_posted_date": "2017-10-11", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 7, "location_summary": "Sacramento, California • Washington D.C., District of Columbia • Minneapolis, Minnesota + 4 more", "locations": [ { "city": "Sacramento", "state": "California" }, { "city": "Washington D.C.", "state": "District of Columbia" }, { "city": "Minneapolis", "state": "Minnesota" }, { "city": "St Louis", "state": "Missouri" }, { "city": "Charlotte", "state": "North Carolina" } ], "official_url": "https://clinicaltrials.gov/study/NCT01437345" }, { "nct_id": "NCT06907875", "title": "A First-in-human Study of EPI-321 in Facioscapulohumeral Muscular Dystrophy", "overall_status": "ACTIVE_NOT_RECRUITING", "study_type": "INTERVENTIONAL", "phases": [ "PHASE1", "PHASE2" ], "conditions": [ "Facioscapulohumeral Muscular Dystrophy" ], "interventions": [ { "name": "EPI-321", "type": "BIOLOGICAL" } ], "intervention_types": [ "BIOLOGICAL" ], "sponsor": "Epicrispr Biotechnologies, Inc.", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": "75 Years", "sex": "ALL", "summary": "18 Years to 75 Years" }, "enrollment_count": 12, "start_date": "2025-05-08", "completion_date": "2032-04-30", "has_results": false, "last_update_posted_date": "2026-07-20", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 5, "location_summary": "Los Angeles, California • Atlanta, Georgia • Baltimore, Maryland + 2 more", "locations": [ { "city": "Los Angeles", "state": "California" }, { "city": "Atlanta", "state": "Georgia" }, { "city": "Baltimore", "state": "Maryland" }, { "city": "Worcester", "state": "Massachusetts" }, { "city": "Salt Lake City", "state": "Utah" } ], "official_url": "https://clinicaltrials.gov/study/NCT06907875" }, { "nct_id": "NCT02836418", "title": "Study to Evaluate the Long-Term Safety, Tolerability, and Biological Activity of ATYR1940 in Participants With Limb Girdle and Facioscapulohumeral Muscular Dystrophy (FSHD)", "overall_status": "COMPLETED", "study_type": "INTERVENTIONAL", "phases": [ "PHASE1", "PHASE2" ], "conditions": [ "Facioscapulohumeral Muscular Dystrophy", "Limb Girdle Muscular Dystrophy" ], "interventions": [ { "name": "ATYR1940", "type": "DRUG" } ], "intervention_types": [ "DRUG" ], "sponsor": "aTyr Pharma, Inc.", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "16 Years", "maximum_age": "25 Years", "sex": "ALL", "summary": "16 Years to 25 Years" }, "enrollment_count": 8, "start_date": "2016-07-13", "completion_date": "2017-04-18", "has_results": true, "last_update_posted_date": "2023-12-22", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 3, "location_summary": "Irvine, California • Stanford, California • Salt Lake City, Utah", "locations": [ { "city": "Irvine", "state": "California" }, { "city": "Stanford", "state": "California" }, { "city": "Salt Lake City", "state": "Utah" } ], "official_url": "https://clinicaltrials.gov/study/NCT02836418" }, { "nct_id": "NCT01671865", "title": "Magnetic Resonance Imaging and Spectroscopy Biomarkers for Facioscapulohumeral Muscular Dystrophy", "overall_status": "ACTIVE_NOT_RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Facioscapulohumeral Muscular Dystrophy" ], "interventions": [], "intervention_types": [], "sponsor": "Hugo W. Moser Research Institute at Kennedy Krieger, Inc.", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "12 Years", "maximum_age": null, "sex": "ALL", "summary": "12 Years and older" }, "enrollment_count": 75, "start_date": "2012-03", "completion_date": "2026-06", "has_results": false, "last_update_posted_date": "2025-07-09", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 1, "location_summary": "Baltimore, Maryland", "locations": [ { "city": "Baltimore", "state": "Maryland" } ], "official_url": "https://clinicaltrials.gov/study/NCT01671865" }, { "nct_id": "NCT02531217", "title": "Safety, Tolerability, Pharmacokinetics (PK), and Activity of ATYR1940 in Participants With Muscular Dystrophy - Study Extension", "overall_status": "COMPLETED", "study_type": "INTERVENTIONAL", "phases": [ "PHASE1", "PHASE2" ], "conditions": [ "Facioscapulohumeral Muscular Dystrophy" ], "interventions": [ { "name": "ATYR1940", "type": "BIOLOGICAL" } ], "intervention_types": [ "BIOLOGICAL" ], "sponsor": "aTyr Pharma, Inc.", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": "65 Years", "sex": "ALL", "summary": "18 Years to 65 Years" }, "enrollment_count": 9, "start_date": "2015-08-13", "completion_date": "2016-05-26", "has_results": true, "last_update_posted_date": "2023-08-18", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 1, "location_summary": "Columbus, Ohio", "locations": [ { "city": "Columbus", "state": "Ohio" } ], "official_url": "https://clinicaltrials.gov/study/NCT02531217" }, { "nct_id": "NCT06847282", "title": "Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds)", "overall_status": "RECRUITING", "study_type": "OBSERVATIONAL", "phases": [], "conditions": [ "Muscular Dystrophy, Facioscapulohumeral" ], "interventions": [], "intervention_types": [], "sponsor": "University of Kansas Medical Center", "sponsor_class": "OTHER", "healthy_volunteers": false, "eligibility": { "minimum_age": "5 Years", "maximum_age": "17 Years", "sex": "ALL", "summary": "5 Years to 17 Years" }, "enrollment_count": 80, "start_date": "2025-05-22", "completion_date": "2028-05", "has_results": false, "last_update_posted_date": "2026-02-25", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 6, "location_summary": "Palo Alto, California • Iowa City, Iowa • Kansas City, Kansas + 3 more", "locations": [ { "city": "Palo Alto", "state": "California" }, { "city": "Iowa City", "state": "Iowa" }, { "city": "Kansas City", "state": "Kansas" }, { "city": "Rochester", "state": "New York" }, { "city": "Durham", "state": "North Carolina" } ], "official_url": "https://clinicaltrials.gov/study/NCT06847282" }, { "nct_id": "NCT02927080", "title": "Study of ACE-083 in Patients With Facioscapulohumeral Muscular Dystrophy (FSHD)", "overall_status": "TERMINATED", "study_type": "INTERVENTIONAL", "phases": [ "PHASE2" ], "conditions": [ "Facioscapulohumeral Muscular Dystrophy" ], "interventions": [ { "name": "ACE-083", "type": "DRUG" }, { "name": "ACE-083 or placebo", "type": "DRUG" } ], "intervention_types": [ "DRUG" ], "sponsor": "Acceleron Pharma, Inc., a wholly-owned subsidiary of Merck & Co., Inc., Rahway, NJ USA", "sponsor_class": "INDUSTRY", "healthy_volunteers": false, "eligibility": { "minimum_age": "18 Years", "maximum_age": null, "sex": "ALL", "summary": "18 Years and older" }, "enrollment_count": 95, "start_date": "2016-11", "completion_date": "2019-10-09", "has_results": true, "last_update_posted_date": "2022-09-26", "last_synced_at": "2026-07-22T12:26:00.706Z", "location_count": 18, "location_summary": "Los Angeles, California • Sacramento, California • Aurora, Colorado + 15 more", "locations": [ { "city": "Los Angeles", "state": "California" }, { "city": "Sacramento", "state": "California" }, { "city": "Aurora", "state": "Colorado" }, { "city": "Indianapolis", "state": "Indiana" }, { "city": "Iowa City", "state": "Iowa" } ], "official_url": "https://clinicaltrials.gov/study/NCT02927080" } ] }