Pompe Pregnancy Sub-Registry

ClinicalTrials.gov ID: NCT00567073

Public ClinicalTrials.gov record NCT00567073. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced May 20, 2026, 1:24 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

A Sub-registry to Observe the Effect of Alglucosidase Alfa or Avalglucosidase Alfa Treatment on Pregnancy and Infant Growth in Women With Pompe Disease

Study identification

NCT ID: NCT00567073
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: Genzyme, a Sanofi Company; Industry
Enrollment: 20 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: Not listed
Sex: Female
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Jun 17, 2007
Primary completion: Jan 30, 2034
Completion: Jan 30, 2034
Last update posted: Apr 15, 2026

2007 – 2034

United States locations

U.S. sites: 15
U.S. states: 13
U.S. cities: 13

Facility	City	State	ZIP	Site status
Barrow Neurol Group- Site Number : 840087	Phoenix	Arizona	85013	Recruiting
University of Florida Pediatrics Genetics- Site Number : 157138	Jacksonville	Florida	32207	Recruiting
Emory University School Of Medicine- Site Number : 840060	Atlanta	Georgia	30322	Recruiting
Indianapolis University School of Medicine- Site Number : 840027	Indianapolis	Indiana	46202	Recruiting
University of Iowa- Site Number : 150294	Iowa City	Iowa	52242-1009	Recruiting
Spectrum for Health- Site Number : 840019	Grand Rapids	Michigan	49503	Recruiting
Washington University- Site Number : 150612	St Louis	Missouri	63110	Recruiting
New York University School Of Medicine- Site Number : 840040	New York	New York	10016	Recruiting
Mt. Sinai School of Medicine- Site Number : 840005	New York	New York	10029	Recruiting
Columbia University Irving Medical Center- Site Number : 157199	New York	New York	10032	Recruiting
Duke University Medical Center Genetics Dept- Site Number : 840037	Durham	North Carolina	27710	Recruiting
LSD Data Registry Site LLC- Site Number : 840094	Dublin	Ohio	43017	Recruiting
Oregon Health and Science University- Site Number : 840095	Portland	Oregon	97239	Completed
Greenwood Genetic Center - Greenville- Site Number : 151184	Greenville	South Carolina	29605	Recruiting
O & O Alpan- Site Number : 840025	Fairfax	Virginia	22030	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 20 non-U.S. sites.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT00567073, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Apr 15, 2026 · Synced May 20, 2026

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The complete protocol, eligibility criteria, and contact information for NCT00567073 live on ClinicalTrials.gov.

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