The Dystonia Coalition Natural History and Biospecimen Repository for Isolated Dystonias
Public ClinicalTrials.gov record NCT01373424. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
Natural History and Biospecimen Repository for Dystonia; Comprehensive Rating Tools for Cervical Dystonia; Validity & Reliability of Diagnostic Methods & Measures of Spasmodic Dysphonia
Study identification
- NCT ID
- NCT01373424
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Emory University
- Other
- Enrollment
- 3,265 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years and older
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Dec 31, 2010
- Primary completion
- Sep 29, 2020
- Completion
- Sep 29, 2020
- Last update posted
- Oct 25, 2020
2011 – 2020
United States locations
- U.S. sites
- 34
- U.S. states
- 22
- U.S. cities
- 29
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama, Birmingham | Birmingham | Alabama | 35233 | — |
| Mayo Clinic, Arizona | Scottsdale | Arizona | 85259 | — |
| Parkinson's and Movement Disorders Institute | Fountain Valley | California | 72708 | — |
| University of California, San Diego | La Jolla | California | 92037 | — |
| University of Colorado, Denver | Denver | Colorado | 80045 | — |
| University of Florida, Gainesville | Gainesville | Florida | 32611 | — |
| Emory University | Atlanta | Georgia | 30322 | — |
| Rush University | Chicago | Illinois | 60612 | — |
| University of Chicago | Chicago | Illinois | 60637 | — |
| University of Iowa | Iowa City | Iowa | 52242 | — |
| University of Maryland | Baltimore | Maryland | 21201 | — |
| Johns Hopkins University | Baltimore | Maryland | 21287 | — |
| National Institutes of Health | Bethesda | Maryland | 20892 | — |
| Parkinson's and Movement Disorders Center of Maryland | Elkridge | Maryland | 21075 | — |
| Beth Israel Deaconess Medical Center | Boston | Massachusetts | 02215 | — |
| Lahey Hospital and Medical Center | Burlington | Massachusetts | 01805 | — |
| Washington University in St. Louis | St Louis | Missouri | 63110 | — |
| University of New Mexico | Albuquerque | New Mexico | 87113 | — |
| Mount Sinai Beth Israel | New York | New York | 10003 | — |
| Mount Sinai Medical Center | New York | New York | 10029 | — |
| University of Rochester | Rochester | New York | 14618 | — |
| Wake Forest | Winston-Salem | North Carolina | 27157 | — |
| Sanford Health - Fargo | Fargo | North Dakota | 58103 | — |
| University of Cincinnati | Cincinnati | Ohio | 45219 | — |
| University of Pennsylvania, Parkinson's Disease and Movement Disorders Center | Philadelphia | Pennsylvania | 19107 | — |
| University of Tennessee | Memphis | Tennessee | 38163 | — |
| University of Texas, Southwestern | Dallas | Texas | 75390 | — |
| Baylor College of Medicine | Houston | Texas | 77030 | — |
| Houston Methodist Neurological Institute | Houston | Texas | 77030 | — |
| University of Texas | Houston | Texas | 77030 | — |
| James Madison University | Harrisonburg | Virginia | 22807 | — |
| Virginia Commonwealth University | Richmond | Virginia | 23298 | — |
| Booth Gardner Parkinson's Care Center | Kirkland | Washington | 98034 | — |
| Medical College of Wisconsin | Milwaukee | Wisconsin | 53226 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 8 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT01373424, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Oct 25, 2020 · Synced May 6, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT01373424 live on ClinicalTrials.gov.