Congenital Muscle Disease Study of Patient and Family Reported Medical Information

ClinicalTrials.gov ID: NCT01403402

Public ClinicalTrials.gov record NCT01403402. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced May 20, 2026, 7:27 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Congenital Muscle Disease Patient and Proxy Reported Outcome Study

Study identification

NCT ID: NCT01403402
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: Cure CMD; Other
Enrollment: 4,000 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: Not listed
Sex: All
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Aug 31, 2009
Primary completion: Aug 31, 2029
Completion: Aug 31, 2029
Last update posted: Aug 8, 2021

2009 – 2029

United States locations

U.S. sites: 1
U.S. states: 1
U.S. cities: 1

Facility	City	State	ZIP	Site status
Congenital Muscle Disease International Registry (www.cmdir.org)	Lakewood	California	90712	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT01403402, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Aug 8, 2021 · Synced May 20, 2026

Open the official record

The complete protocol, eligibility criteria, and contact information for NCT01403402 live on ClinicalTrials.gov.

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