ClinicalTrials.gov record
Completed No phase listed Observational Results available

A Retrospective Study of the Natural History of Patients With Severe Perinatal and Infantile Hypophosphatasia (HPP)

ClinicalTrials.gov ID: NCT01419028

Public ClinicalTrials.gov record NCT01419028. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced May 16, 2026, 3:24 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

A Retrospective, Non-interventional Epidemiologic Study of the Natural History of Patients With Severe Perinatal and Infantile Hypophosphatasia (HPP)

Study identification

NCT ID
NCT01419028
Recruitment status
Completed
Study type
Observational
Phase
Not listed
Lead sponsor
Alexion Pharmaceuticals, Inc.
Industry
Enrollment
48 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
Not listed
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jul 31, 2012
Primary completion
May 31, 2013
Completion
Jan 31, 2014
Last update posted
Mar 31, 2019

2012 – 2014

United States locations

U.S. sites
5
U.S. states
5
U.S. cities
5
Facility City State ZIP Site status
Cedars-Sinai Medical Center Los Angeles California
Indiana University school of medicine Indianapolis Indiana 46202
Shriners Hospital for Children St Louis Missouri
Oregon Health & Science University Portland Oregon
Cook Children's Health Care System Fort Worth Texas

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 7 non-U.S. sites.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT01419028, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Mar 31, 2019 · Synced May 16, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT01419028 live on ClinicalTrials.gov.

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