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Active, not recruiting No phase listed Observational Accepts healthy volunteers

Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome

ClinicalTrials.gov ID: NCT01425944

Public ClinicalTrials.gov record NCT01425944. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Oct 22, 2026, 8:51 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

The Brain Vascular Malformations Clinical Research Network: Predictors of Clinical Course, Project 2: Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

This study has three aims that hope to expand the knowledge on the cause of Sturge-Weber Syndrome (SWS) and improve clinical care of Sturge-Weber Syndrome patients.

Study identification

NCT ID
NCT01425944
Recruitment status
Active, not recruiting
Study type
Observational
Phase
Not listed
Enrollment
600 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
1 Month and older
Sex
All
Healthy volunteers
Accepts healthy volunteers

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Sep 2010 (Actual)
Primary completion
Dec 2025 (Actual)
Completion
Feb 9, 2027 (Estimated)
Last update posted
Mar 2, 2026

2010 – 2027

United States locations

U.S. sites
7
U.S. states
6
U.S. cities
7
Facility City State ZIP Site status
Kennedy Krieger Institute Baltimore Maryland 21205 —
Wayne State University/Children's Hospital of Michigan Detroit Michigan 48201 —
New York University New York New York 10016 —
Cincinnati Children's Hospital Cincinnati Ohio 45229 —
Nationwide Children's Hospital Columbus Ohio 43205 —
Wills Eye Institute Philadelphia Pennsylvania 19107 —
Baylor College of Medicine/Texas Children's Hospital Houston Texas 77030 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT01425944, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Mar 2, 2026 · Synced Oct 22, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT01425944 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →