aHUS Observational Long Term Follow-Up
Public ClinicalTrials.gov record NCT01522170. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
An Observational, Multi-Center, Multi-National, Long Term Follow-Up Study of Atypical Hemolytic Uremic Syndrome (aHUS) Patients Treated With Eculizumab in a Prior Clinical Study
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
There is growing but limited information on the long term clinical status of aHUS patients who have previously received or are continuing to receive treatment with eculizumab. This study is designed to collect clinical data that will provide insight into the long-term outcomes of patients with aHUS.
Study identification
- NCT ID
- NCT01522170
- Recruitment status
- Terminated
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 94 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Mar 2012 (Actual)
- Primary completion
- Jan 2017 (Actual)
- Completion
- Jan 2017 (Actual)
- Last update posted
- Feb 24, 2017
2012 – 2017
United States locations
- U.S. sites
- 16
- U.S. states
- 9
- U.S. cities
- 15
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Emory Healthcare - Children's Center | Atlanta | Georgia | — | — |
| Dunwoody Pediatrics & Children's Healthcare of Atlanta | Dunwoody | Georgia | — | — |
| Fort Wayne Medical Oncology and Hematology | Fort Wayne | Indiana | — | — |
| Not listed | Fort Wayne | Indiana | — | — |
| Boston Children's Hospital | Boston | Massachusetts | — | — |
| Henry Ford Health System | Detroit | Michigan | — | — |
| Hudson Valley Oncology Hematology | Hawthorne | New York | — | — |
| Weill Cornell Medical College | New York | New York | — | — |
| Children's Hospital at Montefiore | The Bronx | New York | — | — |
| Cincinnati Children's Hospital | Cincinnati | Ohio | — | — |
| Arthur James Cancer Hospital | Columbus | Ohio | — | — |
| Driscoll Children's Hospital | Corpus Christi | Texas | — | — |
| The Methodist Hospital Research Institute | Houston | Texas | — | — |
| Seattle Children's Hospital | Seattle | Washington | — | — |
| Providence Sacred Heart Medical Center & Children's Hospital | Spokane | Washington | — | — |
| Fox Valley Hematology | Oshkosh | Wisconsin | — | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 40 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT01522170, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Feb 24, 2017 · Synced Oct 24, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete public registry record, listed eligibility criteria, and available contact information for NCT01522170 live on ClinicalTrials.gov.