Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL)

ClinicalTrials.gov ID: NCT02365922

Public ClinicalTrials.gov record NCT02365922. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced Oct 22, 2026, 9:25 AM EDT

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Official title

Rare Diseases Clinical Research Network Advancing Research and Treatment for Frontotemporal Lobar Degeneration [ARTFL]: Research Projects 1 & 2

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

Frontotemporal Lobar Degeneration (FTLD) is the neuropathological term for a collection of rare neurodegenerative diseases that correspond to four main overlapping clinical syndromes: frontotemporal dementia (FTD), primary progressive aphasia (PPA), corticobasal degeneration syndrome (CBS) and progressive supranuclear palsy syndrome (PSPS). The goal of this study is to build a FTLD clinical research consortium to support the development of FTLD therapies for new clinical trials. The consortium, referred to as Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL), will be headquartered at UCSF and will partner with six patient advocacy groups to manage the consortium. Participants will be evaluated at 14 clinical sites throughout North America and a genetics core will genotype all individuals for FTLD associated genes.

Study identification

NCT ID: NCT02365922
Recruitment status: Completed
Study type: Observational
Phase: Not listed
Lead sponsor: University of California, San Francisco; Other
Enrollment: 1,489 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: 18 Years to 85 Years
Sex: All
Healthy volunteers: Accepts healthy volunteers

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Sep 2014 (Actual)
Primary completion: Aug 2020 (Actual)
Completion: Sep 2020 (Actual)
Last update posted: May 21, 2021

2014 – 2020

United States locations

U.S. sites: 15
U.S. states: 13
U.S. cities: 15

Facility	City	State	ZIP	Site status
University of Alabama	Birmingham	Alabama	35294	—
University of California, Los Angeles	Los Angeles	California	90095	—
University of California, San Diego	San Diego	California	92037	—
University of California, San Francisco	San Francisco	California	94158	—
Mayo Clinic - Jacksonville	Jacksonville	Florida	32224	—
Northwestern University	Chicago	Illinois	60611	—
Johns Hopkins University	Baltimore	Maryland	21287	—
Harvard University Massachusetts General Hospital	Charlestown	Massachusetts	02129	—
Mayo Clinic - Rochester	Rochester	Minnesota	55905	—
Washington University	St Louis	Missouri	63110	—
Columbia University	New York	New York	10032	—
University of North Carolina	Chapel Hill	North Carolina	27599	—
Case Western Reserve University Hospitals Cleveland Medical Center	Cleveland	Ohio	44106	—
University of Pennsylvania	Philadelphia	Pennsylvania	19104-4283	—
University of Washington Harborview Medical Center	Seattle	Washington	98104	—

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 2 non-U.S. sites.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT02365922, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted May 21, 2021 · Synced Oct 22, 2026

Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT02365922 live on ClinicalTrials.gov.

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