Lymphatic Anomalies Registry for the Assessment of Outcome Data
Public ClinicalTrials.gov record NCT02399527. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Study identification
- NCT ID
- NCT02399527
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Boston Children's Hospital
- Other
- Enrollment
- 1,000 participants
Conditions and interventions
Conditions
- Blue Rubber Bleb Nevus Syndrome
- CLOVES Syndrome
- Central Conducting Lymphatic Anomaly
- Generalized Lymphatic Anomaly (GLA)
- Gorham-Stout Disease ("Disappearing Bone Disease")
- Kaposiform Hemangioendothelioma/Tufted Angioma
- Kaposiform Lymphangiomatosis
- Klippel-Trenaunay Syndrome
- Lymphangiomatosis
- Lymphatic Malformation
Interventions
Not listed
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- May 31, 2013
- Primary completion
- May 31, 2035
- Completion
- May 31, 2035
- Last update posted
- Apr 23, 2026
2013 – 2035
United States locations
- U.S. sites
- 1
- U.S. states
- 1
- U.S. cities
- 1
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Boston Children's Hospital | Boston | Massachusetts | 02115 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT02399527, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Apr 23, 2026 · Synced May 21, 2026
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Open the official record
The complete protocol, eligibility criteria, and contact information for NCT02399527 live on ClinicalTrials.gov.