ClinicalTrials.gov record
Completed No phase listed Observational

Natural History of Rett Syndrome & Related Disorders

ClinicalTrials.gov ID: NCT02738281

Public ClinicalTrials.gov record NCT02738281. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced May 20, 2026, 5:21 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Rett Syndrome, MECP2 Duplication Disorder, and Rett- Related Disorders Natural History Protocol

Study identification

NCT ID
NCT02738281
Recruitment status
Completed
Study type
Observational
Phase
Not listed
Lead sponsor
University of Alabama at Birmingham
Other
Enrollment
1,044 participants

Conditions and interventions

Eligibility (public fields only)

Age range
Not listed
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Oct 31, 2015
Primary completion
Jul 30, 2021
Completion
Jul 30, 2021
Last update posted
Aug 4, 2021

2015 – 2021

United States locations

U.S. sites
14
U.S. states
12
U.S. cities
14
Facility City State ZIP Site status
University of Alabama at Birmingham Birmingham Alabama 35294
UCSF Oakland Benioff Children's Hospital Oakland California 94709
University of California San Diego San Diego California 92123
University of Colorado Denver Denver Colorado 80045-2571
Rush University Medical Center Chicago Illinois 60612
Children's Hospital Boston Boston Massachusetts 02115
Gillette Children's Specialty Healthcare Saint Paul Minnesota 55101
Washington University School of Medicine and St. Louis Children's Hospital St Louis Missouri 63110-1093
Cincinnati Children's Hospital Medical Center Cincinnati Ohio 45229
Cleveland Clinic Cleveland Ohio 44195
Children's Hospital of Philadelphia Philadelphia Pennsylvania 19104-4318
Greenwood Genetic Center Greenwood South Carolina 29646
Vanderbilt University Nashville Tennessee 37212
Baylor College of Medicine Houston Texas 77030

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT02738281, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Aug 4, 2021 · Synced May 20, 2026

Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.

Open the official record

The complete protocol, eligibility criteria, and contact information for NCT02738281 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →