International PPB/DICER1 Registry
Public ClinicalTrials.gov record NCT03382158. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
International Pleuropulmonary Blastoma/DICER1 Registry (for PPB, DICER1 and Associated Conditions)
Study identification
- NCT ID
- NCT03382158
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Children's Hospitals and Clinics of Minnesota
- Other
- Enrollment
- 3,400 participants
Conditions and interventions
Conditions
- Ciliary Body Medulloepithelioma
- Cystic Nephroma
- DICER1 Syndrome
- Embryonal Rhabdomyosarcoma
- Embryonal Rhabdomyosarcoma of Cervix
- Embryonal Rhabdomyosarcoma of Uterus (Diagnosis)
- Embryonal Rhabdomyosarcoma of Vagina (Diagnosis)
- Gynandroblastoma
- Nasal Chondromesenchymal Hamartoma
- Neuroblastoma
- Nodular Hyperplasia of Thyroid
- Ovarian Sarcoma
- Pineoblastoma
- Pituitary Cancer
- Pleuropulmonary Blastoma
- Renal Sarcoma
- Sertoli-Leydig Cell Tumor
- Thyroid Carcinoma
- Wilms Tumor
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 0 Minutes to 100 Years
- Sex
- All
- Healthy volunteers
- Accepts healthy volunteers
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Dec 5, 2016
- Primary completion
- Dec 5, 2030
- Completion
- Dec 5, 2035
- Last update posted
- Jan 29, 2025
2016 – 2035
United States locations
- U.S. sites
- 1
- U.S. states
- 1
- U.S. cities
- 1
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Children's Minnesota | Minneapolis | Minnesota | 55404 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT03382158, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jan 29, 2025 · Synced Apr 25, 2026
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Open the official record
The complete protocol, eligibility criteria, and contact information for NCT03382158 live on ClinicalTrials.gov.