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Recruiting No phase listed Observational

Study of Individuals Affected With Hypoplasminogenemia

ClinicalTrials.gov ID: NCT03797495

Public ClinicalTrials.gov record NCT03797495. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Sep 10, 2026, 4:25 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Hypoplasminogenemia: An International RetroSpecTive and PrOspective CohoRt StudY (HISTORY)

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

This is an Investigator initiated retrospective and prospective single cohort study. The study will utilize an international registry and develop a specimen biobank to provide an improved understanding of the natural history of hyposplasminogenemia, to elucidate the heterogeneity of phenotypic expression, identify markers to predict disease course, and inform improved therapeutic modalities

Study identification

NCT ID
NCT03797495
Recruitment status
Recruiting
Study type
Observational
Phase
Not listed
Enrollment
100 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
Not listed
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Dec 17, 2018
Primary completion
Jun 28, 2029
Completion
Nov 25, 2029
Last update posted
Jun 3, 2026

2018 – 2029

United States locations

U.S. sites
13
U.S. states
10
U.S. cities
13
Facility City State ZIP Site status
The University of Alabama (UAB) Birmingham Alabama 35233 Recruiting
Rush University Medical Center Chicago Illinois 60612 Recruiting
Indiana Hemophila @Thrombosis Center Indianapolis Indiana 46260 Recruiting
University of Minnesota, Pediatric Hem/Onc & Cancer Survivorship Program Minneapolis Minnesota 55455 Recruiting
Stony Brook University | Stony Brook Medicine East Setauket New York 11733 Recruiting
SUNY Upstate Medical University, Pediatric Hematology/Oncology Syracuse New York 13210 Recruiting
University of North Carolina at Chapel Hill Raleigh North Carolina 27599 Recruiting
Wake Forest University Winston-Salem North Carolina 27157 Recruiting
Hemophilia Center of Western Pennsylvania Pittsburgh Pennsylvania 15213 Recruiting
Vanderbilt Children's Hematology-Oncology Nashville Tennessee 37232 Completed
Cook Children's Medical Center Forth Worth Texas 76104 Recruiting
The University of Texas Health Science Center at Houston Houston Texas 77030 Completed
Seattle Children's Hospital Seattle Washington 98105-3901 Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 22 non-U.S. sites.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT03797495, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Jun 3, 2026 · Synced Sep 10, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT03797495 live on ClinicalTrials.gov.

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