Estab Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)

ClinicalTrials.gov ID: NCT03981575

Public ClinicalTrials.gov record NCT03981575. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced Apr 22, 2026, 9:04 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Establishing Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)

Study identification

NCT ID: NCT03981575
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: Virginia Commonwealth University; Other
Enrollment: 700 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: 18 Years to 70 Years
Sex: All
Healthy volunteers: Not listed

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Dec 31, 2018
Primary completion: Sep 30, 2026
Completion: Nov 30, 2026
Last update posted: Jun 5, 2025

2019 – 2026

United States locations

U.S. sites: 10
U.S. states: 9
U.S. cities: 10

Facility	City	State	ZIP	Site status
University of California, San Diego	La Jolla	California	92703	Recruiting
University of California, Los Angeles	Los Angeles	California	90095	Recruiting
University of Colorado - Denver	Denver	Colorado	80204	Recruiting
University of Florida	Gainesville	Florida	32611	Recruiting
University of Iowa	Iowa City	Iowa	52242	Recruiting
Kansas University Medical Center	Kansas City	Kansas	66160	Recruiting
University of Rochester	Rochester	New York	14642	Recruiting
Ohio State University	Columbus	Ohio	43210	Recruiting
Houston Methodist Neurological Institute	Houston	Texas	77030	Recruiting
Virginia Commonwealth University	Richmond	Virginia	23298	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 7 non-U.S. sites.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT03981575, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Jun 5, 2025 · Synced Apr 22, 2026

Open the official record

The complete protocol, eligibility criteria, and contact information for NCT03981575 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →