ATHN 11: Liver Transplantation Outcomes Study
Public ClinicalTrials.gov record NCT04055051. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
An Observational Cohort Study of Long-Term Outcomes of Orthotopic Liver Transplantation in People With Hemophilia
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
This study is designed as a multi-center, observational cohort study of participants with hemophilia A and B who have and have not undergone liver transplantation. Participants will be asked to complete health related quality of life questionnaires and provide medical history.
Study identification
- NCT ID
- NCT04055051
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 86 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years and older
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Jun 18, 2020 (Actual)
- Primary completion
- Dec 1, 2022 (Actual)
- Completion
- Dec 1, 2022 (Actual)
- Last update posted
- May 10, 2023
2020 – 2022
United States locations
- U.S. sites
- 15
- U.S. states
- 13
- U.S. cities
- 15
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Orthopaedic Institute for Children Hemophilia Program | Los Angeles | California | 90007 | — |
| University of California, San Francisco | San Francisco | California | 94117 | — |
| Bleeding and Clotting Disorders Institute | Peoria | Illinois | 61614 | — |
| Indiana Hemophilia and Thrombosis Center (IHTC) | Indianapolis | Indiana | 46260 | — |
| Maine Hemophilia and Thrombosis Center | Scarborough | Maine | 04074 | — |
| Henry Ford Health System | Detroit | Michigan | 48202 | — |
| Mayo Comprehensive Hemophilia Center | Rochester | Minnesota | 55905 | — |
| Mary M. Gooley Hemophilia Center, Inc. | Rochester | New York | 14621 | — |
| Comprehensive Hemophilia Treatment Center, University of North Carolina at Chapel Hill | Chapel Hill | North Carolina | 27517 | — |
| Ohio State University Medical Center Hemophilia Treatment Center | Columbus | Ohio | 43210 | — |
| University of Pittsburgh | Pittsburgh | Pennsylvania | 15213 | — |
| Gulf States Hemophilia and Thrombophilia Center | Houston | Texas | 77030 | — |
| Utah Center for Bleeding and Clotting Disorders | Salt Lake City | Utah | 84113 | — |
| Hemophilia Outreach Center Green Bay | Green Bay | Wisconsin | 54311 | — |
| Comprehensive Center for Bleeding Disorders, Milwaukee | Milwaukee | Wisconsin | 53226 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT04055051, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted May 10, 2023 · Synced Oct 21, 2026
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Open the official record
The complete public registry record, listed eligibility criteria, and available contact information for NCT04055051 live on ClinicalTrials.gov.