Rate of Progression in EYS Related Retinal Degeneration
Public ClinicalTrials.gov record NCT04127006. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
Rate of Progression in EYS Related Retinal Degeneration (Pro-EYS)
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
The overall goal of this project funded by the Foundation Fighting Blindness is to characterize the natural history of disease progression in patients with EYS mutations in order to accelerate the development of outcome measures for clinical trials.
Study identification
- NCT ID
- NCT04127006
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 103 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years and older
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Feb 25, 2020 (Actual)
- Primary completion
- Feb 9, 2026 (Actual)
- Completion
- Feb 9, 2026 (Actual)
- Last update posted
- Aug 5, 2026
2020 – 2026
United States locations
- U.S. sites
- 13
- U.S. states
- 12
- U.S. cities
- 13
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of California, San Francisco | San Francisco | California | 94143-0344 | — |
| Colorado Retina Associates | Denver | Colorado | 80230 | — |
| Vitreo-Retinal Associates | Gainesville | Florida | 32607 | — |
| University of Miami: Neuro-ophthalmology Department | Miami | Florida | 33136 | — |
| Emory Eye Center | Atlanta | Georgia | 30322 | — |
| Wilmer Eye Institute at Johns Hopkins | Baltimore | Maryland | 21287-9277 | — |
| Massachusetts Eye and Ear | Boston | Massachusetts | 02114 | — |
| Kellogg Eye Center, University of Michigan | Ann Arbor | Michigan | 48105 | — |
| Duke University Eye Center | Durham | North Carolina | 27710 | — |
| Oregon Health Science University Casey Eye Institute | Portland | Oregon | 97239 | — |
| University of Pittsburgh Medical Center | Pittsburgh | Pennsylvania | 15213 | — |
| Retina Foundation of the Southwest | Dallas | Texas | 75231 | — |
| University of Wisconsin-Madison: McPherson Eye Research Institute | Madison | Wisconsin | 53705 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 6 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT04127006, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Aug 5, 2026 · Synced Oct 27, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete public registry record, listed eligibility criteria, and available contact information for NCT04127006 live on ClinicalTrials.gov.