ClinicalTrials.gov record
Approved For Marketing No phase listed Expanded access

An Expanded Access Program for Risdiplam in Participants With Spinal Muscular Atrophy (SMA)

ClinicalTrials.gov ID: NCT04256265

Public ClinicalTrials.gov record NCT04256265. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced May 16, 2026, 9:28 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

An Expanded Access Program for Risdiplam in Patients With Type 1 or Type 2 Spinal Muscular Atrophy

Study identification

NCT ID
NCT04256265
Recruitment status
Approved For Marketing
Study type
Expanded access
Phase
Not listed
Lead sponsor
Genentech, Inc.
Industry
Enrollment
Not listed

Conditions and interventions

Interventions

  • Risdiplam Drug

Drug

Eligibility (public fields only)

Age range
2 Months and older
Sex
All
Healthy volunteers
Not listed

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Not listed
Primary completion
Not listed
Completion
Not listed
Last update posted
Oct 4, 2020

United States locations

U.S. sites
29
U.S. states
20
U.S. cities
28
Facility City State ZIP Site status
Arkansas Children's Hospital; Pediatrics Little Rock Arkansas 72202
Children's Hospital Los Angeles Los Angeles California 90010
Stanford University Palo Alto California 94304
University of Colorado in Denver-Anschutz Medical Campus Aurora Colorado 80045
Nemours Children's Hospital Orlando Florida 32827
Comprehensive NeuroBehavioral Institute Plantation Florida 33317
Rare Disease Research, LLC Atlanta Georgia 30318
Ann and Robert H. Lurie Children Hospital of Chicago Chicago Illinois 60611
Southern Illinois University, School of Medicine Springfield Illinois 62702
Indiana Hemophilia & Thrombosis center Indianapolis Indiana 46260
University of Iowa Iowa City Iowa 52242
University of Kansas Medical Center Kansas City Kansas 66160
University of Louisville Louisville Kentucky 40202
Massachusetts General Hospital; Neurology Boston Massachusetts 02114
Helen DeVos Children's Hospital at Spectrum Health Grand Rapids Michigan 49503
University of Mississippi Medical Center; Neurology Jackson Michigan 39216
Gillette Spcl Children's Clin; Pediatric Endocrinology Saint Paul Minnesota 55101
St. Louis Children Hospital St Louis Missouri 63110
Goryeb Children's Hospital Morristown New Jersey 07960
Northwell Hospital New Hyde Park New York 11042
NYU Langone New York New York 10003
University of Rochester Medical Center Rochester New York 14642
Wake Forest Baptist Medical Center Winston-Salem North Carolina 27157
Akron Childrens Hospital Akron Ohio 44308
Nationwide Children's Hospital Columbus Ohio 43205
University of Virginia Children's Hospital; Developmental Charlottesville Virginia 22903
University of Wisconsin American Family; Childrens Hospital Madison Wisconsin 53792
Childrens Hospital of Wisconsin Milwaukee Wisconsin 53201
Medical College of Wisconsin, Inc. Milwaukee Wisconsin 53226-3596

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT04256265, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Oct 4, 2020 · Synced May 16, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT04256265 live on ClinicalTrials.gov.

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