ClinicalTrials.gov record
Available No phase listed Expanded access

Early Access Program With Arimoclomol in US Patients With NPC

ClinicalTrials.gov ID: NCT04316637

Public ClinicalTrials.gov record NCT04316637. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced May 11, 2026, 4:36 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Early Access Program With Arimoclomol for the Treatment of Niemann-Pick Disease Type C in the US

Study identification

NCT ID
NCT04316637
Recruitment status
Available
Study type
Expanded access
Phase
Not listed
Lead sponsor
ZevraDenmark
Industry
Enrollment
Not listed

Conditions and interventions

Interventions

  • Arimoclomol Drug

Drug

Eligibility (public fields only)

Age range
2 Years and older
Sex
All
Healthy volunteers
Not listed

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Not listed
Primary completion
Not listed
Completion
Not listed
Last update posted
Aug 15, 2024

United States locations

U.S. sites
13
U.S. states
10
U.S. cities
13
Facility City State ZIP Site status
University of Alabama Birmingham Birmingham Alabama 35233 Available
UCSF Benioff Children's Hospital and Research Center/ UCSF Oakland California 94609 Available
Children's Hospital of Orange County (CHOC) Orange California 92868 Available
Nicklaus Children's Hospital Miami Florida 33155 Available
Rush University Medical Center Chicago Illinois 60612 Available
Boston Childrens Hospital Boston Massachusetts 02215 Available
Mayo Clinic Children's Center Rochester Minnesota 55905 Available
New York University School of Medicine New York New York 10017 Available
Cincinnati Children's Hospital Medical Center (CCH) Cincinnati Ohio 45229 Available
Children's Hospital of Philadelphia Philadelphia Pennsylvania 19104 Available
UPMC Children's Hospital of Pittsburgh Pittsburgh Pennsylvania 15224 Available
Dell Children's Medical Center Austin Texas 78723 Available
UT Health / McGovern Medical School; Division of Medical Genetics Houston Texas 77030 Available

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT04316637, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Aug 15, 2024 · Synced May 11, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT04316637 live on ClinicalTrials.gov.

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