ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD)
Public ClinicalTrials.gov record NCT04363684. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) represents the formalized integration of ARTFL (U54 NS092089; funded through 2019) and LEFFTDS (U01 AG045390; funded through 2019) as a single North American research consortium to study FTLD for 2019 and beyond.
Study identification
- NCT ID
- NCT04363684
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 2,100 participants
Conditions and interventions
Conditions
- Frontotemporal Lobar Degeneration (FTLD)
- Progressive Supranuclear Palsy (PSP)
- Corticobasal Degeneration (CBD)
- Behavioral Variant Frontotemporal Dementia (bvFTD)
- Semantic Variant Primary Progressive Aphasia (svPPA)
- Nonfluent Variant Primary Progressive Aphasia (nfvPPA)
- FTD With Amyotrophic Lateral Sclerosis (FTD/ALS)
- Amyotrophic Lateral Sclerosis
- Oligosymptomatic PSP (oPSP)
- C9orf72
- GRN Related Frontotemporal Dementia
- MAPT Gene Mutation
- TBK1 Gene Mutation
- Oligosymptomatic Progressive Supranuclear Palsy
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years and older
- Sex
- All
- Healthy volunteers
- Accepts healthy volunteers
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Feb 29, 2020
- Primary completion
- Aug 30, 2030
- Completion
- Aug 30, 2030
- Last update posted
- Jul 29, 2026
2020 – 2030
United States locations
- U.S. sites
- 25
- U.S. states
- 20
- U.S. cities
- 24
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama Birmingham | Birmingham | Alabama | 35233 | Recruiting |
| University of California, Los Angeles | Los Angeles | California | 90095 | Recruiting |
| University of California, San Diego | San Diego | California | 92093 | Recruiting |
| University of California San Francisco | San Francisco | California | 91358 | Recruiting |
| University of Colorado Denver | Denver | Colorado | 80204 | Recruiting |
| Mayo Clinic Florida | Jacksonville | Florida | 32224 | Recruiting |
| Emory University | Atlanta | Georgia | 30322 | Recruiting |
| Northwestern University | Chicago | Illinois | 60611 | Recruiting |
| Indiana University | Indianapolis | Indiana | 46202 | Recruiting |
| Johns Hopkins University | Baltimore | Maryland | 21287 | Recruiting |
| NIH | Bethesda | Maryland | 20814 | Recruiting |
| Massachusetts General Hospital | Boston | Massachusetts | 02114 | Recruiting |
| University of Michigan | Ann Arbor | Michigan | 48109 | Recruiting |
| Mayo Clinic Rochester | Rochester | Minnesota | 55905 | Recruiting |
| Washinton University in St. Louis | St Louis | Missouri | 63110 | Recruiting |
| Cleveland Clinic Lou Ruvo Center for Brain Health | Las Vegas | Nevada | 89106 | Recruiting |
| Mount Sinai | New York | New York | 10029 | Not yet recruiting |
| Columbia University | New York | New York | 10032 | Recruiting |
| University of North Carolina, Chapel Hill | Chapel Hill | North Carolina | 27514 | Recruiting |
| Case Western Reserve Medical Center | Cleveland | Ohio | 44106 | Recruiting |
| University of Pennsylvania | Philadelphia | Pennsylvania | 19104 | Recruiting |
| Vanderbilt University | Nashville | Tennessee | 37235 | Recruiting |
| Nantz National Alzheimer Center Houston | Houston | Texas | 77030 | Recruiting |
| UT San Antonio Health Science Center | San Antonio | Texas | 78229 | Recruiting |
| University of Washington | Seattle | Washington | 98195 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 2 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT04363684, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jul 29, 2026 · Synced Sep 4, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT04363684 live on ClinicalTrials.gov.