ConTTRibute: A Global Observational Study of Patients With Transthyretin (TTR)-Mediated Amyloidosis (ATTR Amyloidosis)
Public ClinicalTrials.gov record NCT04561518. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
ConTTRibute: A Global Observational Multicenter Long-Term Study of Patients With Transthyretin (TTR)-Mediated Amyloidosis (ATTR Amyloidosis)
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
The purpose of this study is to: * Describe epidemiological and clinical characteristics, natural history and real-world clinical management of ATTR amyloidosis patients * Characterize the safety and effectiveness of patisiran and vutrisiran as part of routine clinical practice in the real-world clinical setting * Describe disease emergence/progression in pre-symptomatic carriers of a known disease-causing transthyretin (TTR) variant
Study identification
- NCT ID
- NCT04561518
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 1,500 participants
Conditions and interventions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Nov 22, 2020
- Primary completion
- Dec 30, 2033
- Completion
- Dec 30, 2033
- Last update posted
- Sep 7, 2026
2020 – 2033
United States locations
- U.S. sites
- 13
- U.S. states
- 11
- U.S. cities
- 13
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Clinical Trial Site | La Jolla | California | 92037 | Recruiting |
| Clinical Trial Site | Los Angeles | California | 90095 | Recruiting |
| Clinical Trial Site | Jacksonville | Florida | 32224 | Recruiting |
| Clinical Trial Site | Iowa City | Iowa | 52242 | Recruiting |
| Clinical Trial Site | Kansas City | Kansas | 66160 | Recruiting |
| Clinical Trial Site | Baltimore | Maryland | 21224 | Recruiting |
| Clinical Trial Site | Boston | Massachusetts | 02127 | Completed |
| Clinical Trial Site | New York | New York | 10034 | Recruiting |
| Clinical Trial Site | Durham | North Carolina | 27710 | Recruiting |
| Clinical Trial Site | Columbus | Ohio | 43210 | Recruiting |
| Clinical Trial Site | Philadelphia | Pennsylvania | 19104 | Recruiting |
| Clinical Trial Site | Austin | Texas | 78756 | Recruiting |
| Clinical Trial Site | Houston | Texas | 77030 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 27 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT04561518, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Sep 7, 2026 · Synced Sep 12, 2026
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Open the official record
The complete protocol, eligibility criteria, and contact information for NCT04561518 live on ClinicalTrials.gov.