Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)

ClinicalTrials.gov ID: NCT04635891

Public ClinicalTrials.gov record NCT04635891. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced May 8, 2026, 12:27 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Study identification

NCT ID: NCT04635891
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: University of Kansas Medical Center; Other
Enrollment: 450 participants

Conditions and interventions

Conditions

FSHD

Interventions

Not listed

Eligibility (public fields only)

Age range: Not listed
Sex: All
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Dec 14, 2020
Primary completion: Nov 30, 2027
Completion: Dec 31, 2027
Last update posted: May 6, 2026

2020 – 2028

United States locations

U.S. sites: 16
U.S. states: 13
U.S. cities: 16

Facility	City	State	ZIP	Site status
David Geffen School of Medicine at UCLA	Los Angeles	California	90095	Recruiting
Neuromuscular Disorders Program at Stanford University School of Medicine	Stanford	California	94306	Recruiting
University of Colorado Anschutz Medical Campus	Aurora	Colorado	80045	Recruiting
Univeristy of Florida Gainesville	Gainesville	Florida	32608	Recruiting
University of Iowa	Iowa City	Iowa	52242	Recruiting
Univeristy of Kansas Medical Center	Kansas City	Kansas	66160	Recruiting
Kennedy Krieger Institute	Baltimore	Maryland	21205	Recruiting
University of Rochester Medical Center	Rochester	New York	14642	Recruiting
Duke University - Lenox Baker Children's Hospital	Durham	North Carolina	27705	Recruiting
The Ohio State University Medical Center	Columbus	Ohio	43221	Recruiting
Austin Neuromuscular Center	Austin	Texas	78759	Recruiting
Univeristy of Texas Southwestern Medical Center	Dallas	Texas	75390	Recruiting
University of Texas Health San Antonio	San Antonio	Texas	78229	Not yet recruiting
University of Utah	Salt Lake City	Utah	84132	Recruiting
Virginia Commonwealth University	Richmond	Virginia	23219	Recruiting
University of Washington Medical Center	Seattle	Washington	98195	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 5 non-U.S. sites.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT04635891, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted May 6, 2026 · Synced May 8, 2026

Open the official record

The complete protocol, eligibility criteria, and contact information for NCT04635891 live on ClinicalTrials.gov.

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