CureDuchenne Link®: A Resource for Research
Public ClinicalTrials.gov record NCT04972604. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
CureDuchenne Link®: A Resource to Support Research Studies in Duchenne and Becker Muscular Dystrophy (DMD/BMD)
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).
Study identification
- NCT ID
- NCT04972604
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 240 participants
Conditions and interventions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 4 Weeks and older
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Jul 8, 2021
- Primary completion
- Dec 11, 2025
- Completion
- Dec 11, 2025
- Last update posted
- Jul 23, 2026
2021 – 2025
United States locations
- U.S. sites
- 10
- U.S. states
- 9
- U.S. cities
- 10
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Arkansas Children's Hospital | Little Rock | Arkansas | 72202 | — |
| CureDuchenne | Newport Beach | California | 92660 | — |
| Children's Hospital of Orange County | Orange | California | 92868 | — |
| Rare Disease Research | Atlanta | Georgia | 30329 | — |
| University of Iowa | Iowa City | Iowa | 52242 | — |
| Kansas University Clinical Research Center | Fairway | Kansas | 66205 | — |
| Corewell Health | Grand Rapids | Michigan | 49503 | — |
| Rare Disease Research Center | Hillsborough | North Carolina | 27278 | — |
| Penn State Health | Hershey | Pennsylvania | 17033 | — |
| Neurology Rare Disease Center | Denton | Texas | 76208 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT04972604, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jul 23, 2026 · Synced Sep 2, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT04972604 live on ClinicalTrials.gov.