The Severe Von Willebrand Disease (sVWD) Patient Registry

ClinicalTrials.gov ID: NCT05437536

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This page only displays public information reproduced from the official ClinicalTrials.gov record NCT05437536. It adds no medical advice, opinions, or eligibility judgments. The official record remains the source of truth for eligibility criteria, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced Nov 14, 2026, 9:54 PM EST

All trial information on this site comes from the official ClinicalTrials.gov public API (clinicaltrials.gov/api/v2), run by the U.S. National Library of Medicine. We only display that public information; we do not add opinions, endorsements, or any other intent. Always review the official ClinicalTrials.gov record for the latest information.

Official title

The Severe Von Willebrand Disease Patient Registry: A Longitudinal Natural History and Patient Outcomes Study

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.

Study identification

NCT ID: NCT05437536
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: VWD Connect Foundation; Other
Enrollment: 400 participants

Conditions and interventions

Conditions

VWD - Von Willebrand's Disease

Interventions

Not listed

Eligibility (public fields only)

Age range: Not listed
Sex: All
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Dec 10, 2021 (Actual)
Primary completion: Dec 2031 (Estimated)
Completion: Dec 2031 (Estimated)
Last update posted: Apr 22, 2026

2021 – 2031

United States locations

U.S. sites: 1
U.S. states: 1
U.S. cities: 1

Facility	City	State	ZIP	Site status
VWD Connect Foundation	Wellington	Florida	33414	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT05437536, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Apr 22, 2026 · Synced Nov 14, 2026