TSC Biosample Repository and Natural History Database
Public ClinicalTrials.gov record NCT05676099. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
TSC Alliance Tuberous Sclerosis Complex (TSC) Biosample Repository and Natural History Database
Study identification
- NCT ID
- NCT05676099
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- National Tuberous Sclerosis Association
- Other
- Enrollment
- 5,000 participants
Conditions and interventions
Conditions
Interventions
- Buccal (cheek) swab Procedure
- Genetic Testing Genetic
- Phlebotomy Procedure
- Tissue donation after routine clinical procedure Other
Procedure · Genetic · Other
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Dec 31, 2015
- Primary completion
- Nov 30, 2050
- Completion
- Nov 30, 2050
- Last update posted
- May 7, 2026
2016 – 2050
United States locations
- U.S. sites
- 24
- U.S. states
- 16
- U.S. cities
- 22
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama Birmingham | Birmingham | Alabama | — | Recruiting |
| Loma Linda University Children's Hospital | Loma Linda | California | — | Recruiting |
| University of California Los Angeles | Los Angeles | California | 90095 | Recruiting |
| Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center | Oakland | California | — | Completed |
| The Children's Hospital | Denver | Colorado | — | Recruiting |
| Nicklaus Children's Hospital | Miami | Florida | — | Recruiting |
| Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago | Chicago | Illinois | — | Recruiting |
| University of Iowa Hospitals and Clinics | Iowa City | Iowa | — | Recruiting |
| TSC Alliance | Silver Spring | Maryland | 20910 | Recruiting |
| Boston Children's Hospital | Boston | Massachusetts | — | Recruiting |
| Massachusetts General Hospital | Boston | Massachusetts | — | Recruiting |
| Minnesota Epilepsy Group | Roseville | Minnesota | — | Recruiting |
| Children's Mercy Research Institute | Kansas City | Missouri | 64108 | Recruiting |
| Washington University in St. Louis | St Louis | Missouri | 63110 | Recruiting |
| New York University Medical Center | New York | New York | — | Recruiting |
| University of Rochester Medical Center | Rochester | New York | 14642 | Recruiting |
| Cincinnati Children's Hospital Medical Center | Cincinnati | Ohio | — | Recruiting |
| Cleveland Clinic Foundation | Cleveland | Ohio | — | Recruiting |
| University of Pennsylvania Medical Center | Philadelphia | Pennsylvania | — | Recruiting |
| Le Bonheur Children's Hospital | Memphis | Tennessee | — | Recruiting |
| Scottish Rite Hospital for Children | Dallas | Texas | — | Recruiting |
| Texas Childrens Hospital Baylor College of Medicine | Houston | Texas | 77030 | Recruiting |
| Memorial Hermann-Texas Medical Center (University of Texas Houston) | Houston | Texas | — | Recruiting |
| Children's National Medical Center | Fairfax | Virginia | — | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 2 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT05676099, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted May 7, 2026 · Synced May 19, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT05676099 live on ClinicalTrials.gov.