Global Patient Registry of Inherited Retinal Diseases
Public ClinicalTrials.gov record NCT05957276. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
Global Patient Registry of Inherited Retinal Disease
Study identification
- NCT ID
- NCT05957276
- Recruitment status
- Active, not recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Janssen Research & Development, LLC
- Industry
- Enrollment
- 889 participants
Conditions and interventions
Conditions
Interventions
- Standard of Care Other
Other
Eligibility (public fields only)
- Age range
- 3 Years and older
- Sex
- All
- Healthy volunteers
- Not listed
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Aug 30, 2023
- Primary completion
- Jul 2, 2026
- Completion
- Jul 2, 2026
- Last update posted
- May 7, 2026
2023 – 2026
United States locations
- U.S. sites
- 18
- U.S. states
- 15
- U.S. cities
- 17
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama Birmingham | Birmingham | Alabama | 35294 | — |
| University of Arkansas for Medical Sciences | Little Rock | Arkansas | 72205 | — |
| University of Southern California | Los Angeles | California | 90033 | — |
| UCSF | San Francisco | California | 94143 | — |
| Bascom Palmer Eye Institute | Miami | Florida | 33136 | — |
| Emory University | Atlanta | Georgia | 30322 | — |
| University of Iowa | Iowa City | Iowa | 52242 | — |
| Ochsner Medical Center | New Orleans | Louisiana | 70121 | — |
| John Hopkins Hospital | Baltimore | Maryland | 212051832 | — |
| Univ of Michigan Medical Center | Ann Arbor | Michigan | 48105 | — |
| University Of Minnesota Medical Center | Minneapolis | Minnesota | 55455 | — |
| University of Rochester Medical Center | Rochester | New York | 14642 | — |
| Cleveland Clinic | Cleveland | Ohio | 44195 | — |
| Oregon Health And Science University | Portland | Oregon | 97239 | — |
| UPMC | Pittsburgh | Pennsylvania | 15213 | — |
| Retina Consultants of Texas | Bellaire | Texas | 77401 | — |
| Baylor College of Medicine | Houston | Texas | 77030 | — |
| University of Texas Houston | Houston | Texas | 77204 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 57 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT05957276, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted May 7, 2026 · Synced May 10, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT05957276 live on ClinicalTrials.gov.