Global Patient Registry of Inherited Retinal Diseases
Public ClinicalTrials.gov record NCT05957276. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
NOPRODRPG0002: NOPRODRPG0002 - IRD_RPGR Patient Registry
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
The purpose of this study is to better understand the natural history of Inherited Retinal Disease (IRD) and help inform patient management.
Study identification
- NCT ID
- NCT05957276
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 886 participants
Conditions and interventions
Conditions
Eligibility (public fields only)
- Age range
- 3 Years and older
- Sex
- All
- Healthy volunteers
- Not listed
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Aug 30, 2023
- Primary completion
- Jul 1, 2026
- Completion
- Jul 1, 2026
- Last update posted
- Aug 27, 2026
2023 – 2026
United States locations
- U.S. sites
- 18
- U.S. states
- 15
- U.S. cities
- 17
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama Birmingham | Birmingham | Alabama | 35294 | — |
| University of Arkansas for Medical Sciences | Little Rock | Arkansas | 72205 | — |
| University of Southern California | Los Angeles | California | 90033 | — |
| UCSF | San Francisco | California | 94143 | — |
| Bascom Palmer Eye Institute | Miami | Florida | 33136 | — |
| Emory University | Atlanta | Georgia | 30322 | — |
| University of Iowa | Iowa City | Iowa | 52242 | — |
| Ochsner Medical Center | New Orleans | Louisiana | 70121 | — |
| John Hopkins Hospital | Baltimore | Maryland | 212051832 | — |
| Univ of Michigan Medical Center | Ann Arbor | Michigan | 48105 | — |
| University Of Minnesota Medical Center | Minneapolis | Minnesota | 55455 | — |
| University of Rochester Medical Center | Rochester | New York | 14642 | — |
| Cleveland Clinic | Cleveland | Ohio | 44195 | — |
| Oregon Health And Science University | Portland | Oregon | 97239 | — |
| UPMC | Pittsburgh | Pennsylvania | 15213 | — |
| Retina Consultants of Texas | Bellaire | Texas | 77401 | — |
| Baylor College of Medicine | Houston | Texas | 77030 | — |
| University of Texas Houston | Houston | Texas | 77204 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 57 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT05957276, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Aug 27, 2026 · Synced Sep 29, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT05957276 live on ClinicalTrials.gov.