Comprehensive HHT Outcomes Registry of the United States (CHORUS)

ClinicalTrials.gov ID: NCT06259292

Public ClinicalTrials.gov record NCT06259292. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced May 20, 2026, 2:14 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

CHORUS: Comprehensive HHT (Hereditary Hemorrhagic Telangiectasia) Outcomes Registry of the United States

Study identification

NCT ID: NCT06259292
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: Cure HHT; Other
Enrollment: 10,000 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: Not listed
Sex: All
Healthy volunteers: Accepts healthy volunteers

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Nov 12, 2023
Primary completion: Oct 31, 2033
Completion: Oct 31, 2033
Last update posted: Jun 12, 2025

2023 – 2033

United States locations

U.S. sites: 16
U.S. states: 15
U.S. cities: 16

Facility	City	State	ZIP	Site status
University of Alabama at Birmingham	Birmingham	Alabama	35294	Recruiting
University of California, Los Angeles	Los Angeles	California	90095	Recruiting
University of California, San Francisco	San Francisco	California	94107	Recruiting
University of Colorado, Denver	Aurora	Colorado	80045	Recruiting
Yale University	New Haven	Connecticut	06520	Recruiting
Augusta University	Augusta	Georgia	30912	Recruiting
Massachusetts General Hospital	Boston	Massachusetts	02114	Recruiting
Mayo Clinic	Rochester	Minnesota	55905	Recruiting
Washington University School of Medicine	St Louis	Missouri	63110	Recruiting
Columbia University	New York	New York	10032	Recruiting
University of North Carolina, Chapel Hill	Chapel Hill	North Carolina	27599	Recruiting
The Cleveland Clinic	Cleveland	Ohio	44106	Recruiting
Oregon Health and Science University	Portland	Oregon	97239	Recruiting
University of Pennsylvania	Philadelphia	Pennsylvania	19104	Recruiting
University of Texas Southwestern	Dallas	Texas	75390	Recruiting
University of Utah	Salt Lake City	Utah	84132	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT06259292, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Jun 12, 2025 · Synced May 20, 2026

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The complete protocol, eligibility criteria, and contact information for NCT06259292 live on ClinicalTrials.gov.

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