Experiences of Genetics Patients With Visible Abnormalities Who Facilitate Teaching in Genetics Clinics
Public ClinicalTrials.gov record NCT00341718. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
The Experiences of Genetics Patients With Visible Differences Who Facilitate Teaching in Genetics Clinics
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
This study will describe the experience of patients with visible physical abnormalities in the genetics clinic when they are involved in teaching others about their condition. Information from this study may be used to enhance educational experiences in genetics clinics. Patients 18 years of age and older with a visible physical anomaly who have been seen by a genetics professional in the past 5 years may be eligible for this study. In a tape-recorded telephone interview, patients are asked about the following: * Their experiences when visiting the genetics clinic * The circumstances under which they have been approached to participate in teaching others * Their perspective on specific teaching behaviors used in genetic consultations, and how this perspective is affected by their perception of their own visible difference * The benefits and downsides of being involved in teaching others * The circumstances under which they feel comfortable being approached by genetics providers to help teach others about their condition * The conditions or circumstances that make some individual teaching experiences better or worse than others
Study identification
- NCT ID
- NCT00341718
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 30 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years and older
- Sex
- All
- Healthy volunteers
- Accepts healthy volunteers
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Mar 29, 2006 (Type not available)
- Primary completion
- Not listed
- Completion
- Mar 31, 2007 (Type not available)
- Last update posted
- Jul 2, 2017
2006 – 2007
United States locations
- U.S. sites
- 1
- U.S. states
- 1
- U.S. cities
- 1
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Johns Hopkins University | Baltimore | Maryland | 21205 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT00341718, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jul 2, 2017 · Synced Oct 17, 2026
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Open the official record
The complete public registry record, listed eligibility criteria, and available contact information for NCT00341718 live on ClinicalTrials.gov.