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Terminated No phase listed Observational

Establishing a Repository of Blood and DNA Samples From People With Sickle Cell Disease (Comprehensive Sickle Cell Centers Collaborative Genotype-Phenotype Database and Sample Repository)

ClinicalTrials.gov ID: NCT00528203

Public ClinicalTrials.gov record NCT00528203. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Oct 24, 2026, 6:16 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Comprehensive Sickle Cell Centers (CSCC) Collaborative Genotype-Phenotype Database and Sample Repository

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

Sickle cell disease (SCD), also known as sickle cell anemia, is an inherited blood disease that can cause intense pain episodes. The purpose of this study is to collect, test, and archive blood and DNA samples from children and adults with SCD to study the role that genes play in SCD. Blood and DNA samples will be stored for use in future SCD studies.

Study identification

NCT ID
NCT00528203
Recruitment status
Terminated
Study type
Observational
Phase
Not listed
Enrollment
3,640 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
Not listed
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Aug 2007 (Type not available)
Primary completion
Sep 2008 (Actual)
Completion
Sep 2008 (Actual)
Last update posted
Jul 12, 2016

2007 – 2008

United States locations

U.S. sites
13
U.S. states
7
U.S. cities
9
Facility City State ZIP Site status
Children's Hospital Oakland Oakland California 94609 —
University of California, San Francisco San Francisco California 94134 —
Brigham & Women's Hospital Boston Massachusetts 02115 —
Children's Hospital of Boston Boston Massachusetts 02115 —
Boston Medical Center Boston Massachusetts 02118 —
Montefiore Medical Center The Bronx New York 10463 —
University of North Carolina-Chapel Hill Chapel Hill North Carolina 27599 —
Cincinnati Children's Hospital Cincinnati Ohio 45229 —
Children's Hospital of Philadelphia Philadelphia Pennsylvania 19104 —
St. Christopher's Hospital for Children Philadelphia Pennsylvania 19134 —
Children's Medical Hospital of Dallas Dallas Texas 75235 —
University of Texas Southwestern & Parkland Dallas Texas 75235 —
University of Texas at Galveston Galveston Texas 77555 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT00528203, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Jul 12, 2016 · Synced Oct 24, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT00528203 live on ClinicalTrials.gov.

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