ClinicalTrials.gov record
Completed No phase listed Observational

Making Sense of a Positive Genetic Test Result for Huntington Disease

ClinicalTrials.gov ID: NCT00539747

Public ClinicalTrials.gov record NCT00539747. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced May 19, 2026, 8:31 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Meaning Making Among Asymptomatic Individuals With a Positive Presymptomatic Genetic Test Result for Huntington Disease

Study identification

NCT ID
NCT00539747
Recruitment status
Completed
Study type
Observational
Phase
Not listed
Lead sponsor
National Human Genome Research Institute (NHGRI)
NIH
Enrollment
50 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
18 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Sep 30, 2007
Primary completion
Not listed
Completion
Aug 4, 2008
Last update posted
Jul 1, 2017

2007 – 2008

United States locations

U.S. sites
4
U.S. states
3
U.S. cities
4
Facility City State ZIP Site status
Johns Hopkins University Baltimore Maryland 21205
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike Bethesda Maryland 20892
University of Pittsburgh Pittsburgh Pennsylvania 15261
Baylor College of Medicine Houston Texas 77030

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT00539747, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Jul 1, 2017 · Synced May 19, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT00539747 live on ClinicalTrials.gov.

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