Survey Study and Records Review of Treatment Outcomes in Freeman-Sheldon Syndrome
Public ClinicalTrials.gov record NCT01144741. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
Study of Therapeutic Outcomes and Practices in Freeman-Sheldon Syndrome
Study identification
- NCT ID
- NCT01144741
- Recruitment status
- Terminated
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Freeman-Sheldon Research Group, Inc.
- Other
- Enrollment
- 2 participants
Conditions and interventions
Conditions
- Freeman-Sheldon Syndrome
- Arthrogryposis Distal Type 2A
- Whistling Face Syndrome
- Craniocarpotarsal Dysplasia
- Craniocarpotarsal Dystrophy
- Freeman-Sheldon Syndrome Variant
- Sheldon-Hall Syndrome
- Arthrogryposis Distal Type 2B
- Gordon Syndrome
- Arthrogryposis Distal Type 3
- Arthrogryposis Distal Type 1
- Arthrogryposis, Distal, Type 1A
- Arthrogryposis Distal Type 1B
- Arthrogryposis, Distal
- Craniofacial Abnormalities
- Arthrogryposis
Interventions
- PTSD Checklist-Civilian (PCL-C) Other
- Modified Flanagan Quality of Life Scale Other
- Center for Epidemiologic Studies Depression Scale (CES-D) Other
- Functional Enquiry (or Review of Systems) Form Other
- Study of Therapeutic Outcomes and Practices in Freeman-Sheldon Syndrome (STOP-FSS) Questionnaire Other
- FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI) Other
- Medical Records Review Other
Other
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Jan 31, 2010
- Primary completion
- Jun 13, 2022
- Completion
- Jun 13, 2022
- Last update posted
- Jun 20, 2022
2010 – 2022
United States locations
- U.S. sites
- 1
- U.S. states
- 1
- U.S. cities
- 1
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Freeman-Sheldon Research Group, Inc. Headquarters | Buckhannon | West Virginia | 26201 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT01144741, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jun 20, 2022 · Synced Jul 22, 2026
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Open the official record
The complete protocol, eligibility criteria, and contact information for NCT01144741 live on ClinicalTrials.gov.