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Completed No phase listed Observational

A 3-year, Prospective, Non-interventional, Multicenter Registry in Sickle Cell Disease (SCD) Patients

ClinicalTrials.gov ID: NCT01220115

Public ClinicalTrials.gov record NCT01220115. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Oct 3, 2026, 12:43 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

A 3-year, Prospective, Non-interventional, Multicenter Registry in Sickle Cell Disease Patients

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

A long term observational study in sickle cell disease will enhance the understanding of the disease patterns, current transfusion practices, treatments and outcomes in sickle cell disease.

Study identification

NCT ID
NCT01220115
Recruitment status
Completed
Study type
Observational
Phase
Not listed
Lead sponsor
Novartis
Industry
Enrollment
498 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
2 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jan 2010 (Type not available)
Primary completion
Sep 2014 (Actual)
Completion
Sep 2014 (Actual)
Last update posted
Dec 9, 2019

2010 – 2014

United States locations

U.S. sites
42
U.S. states
19
U.S. cities
34
Facility City State ZIP Site status
Hematology Oncology Services of Arkansas Little Rock Arkansas 72205 —
Children's Hospital Oakland (CHO) Oakland California 94609 —
Children's Hospital of Orange County Sickle Cell Disease Center Orange California 92668 —
Rady Children's Hopsital / UC San Diego University Hospital Sickle Cell Disease Center San Diego California 92123 —
Hematology Oncology, P.C. Stamford Connecticut 06902 —
Howard University Washington D.C. District of Columbia 20060 —
Broward Oncology Associates, P.A. Fort Lauderdale Florida 33308 —
Miami Children's Hospital Miami Florida 33155 —
Innovative Medical Research Miami Florida 33179 —
M.D. Anderson Cancer Center Orlando Orlando Florida 32806 —
All Children's Hospital St. Petersburg Florida 33701 —
Central Tampa Hematology and Oncology Associates Tampa Florida 33607 —
St. Joseph Children's Hospital Tampa Florida 33607 —
University of Illinois at Chicago, Dept of Pediatrics Chicago Illinois 60612 —
Abington Hematology Oncology Associates, Inc Oak Lawn Illinois 60453 —
Tulane University School of Medicine New Orleans Louisiana 70112 —
LSU Department of Pediatrics Children's Hospital New Orleans Louisiana 70118 —
Johns Hopkins University Division of Hematology Baltimore Maryland 21205 —
Oncology-Hematology Associates, P.A. Clinton Maryland 20735 —
Children's Hospital Boston - Harvard Boston Massachusetts 02115 —
Boston Comprehensive Sickle Cell Center Boston Massachusetts 02118 —
West Michigan Cancer Center Kalamazoo Michigan 49007-3731 —
University of Missouri Child Health, Division of Pediatric Hematology/Oncology Columbia Missouri 65212 —
Children's Mercy Hospital Kansas City Missouri 64108 —
Research Medical Center Kansas City Missouri 64132 —
Newark Beth Israel Medical Center Newark New Jersey 07112 —
Maimonides Medical Center Brooklyn New York 11209 —
New York Methodist Hospital Dept of Med/Sickle Cell Program Brooklyn New York 11215 —
Interfaith Medical Center-Comprehensive Sickle Cell Program Brooklyn New York 11238 —
Cohen Children's Medical Center of NY (CCMC) New Hyde Park New York 11040 —
Center for Children's Cancer & Blood Disorders Syracuse New York 13210 —
Presbyterian Hospital Pediatric Sickle Cell Program Charlotte North Carolina 28204 —
Ohio Region VI Sickle Cell Program Akron Ohio 44308 —
Cincinnati Children's Medical Center Cincinnati Ohio 45229-3039 —
The Children's Medical Center of Dayton Dayton Ohio 45404 —
Medical University of SC-Pediatric Sickle Cell Center Charleston South Carolina 29425 —
M. Francisco Gonzalez, M.D., P.A. Columbia South Carolina 29203 —
Diggs-Kraus Sickle Cell Center Memphis Tennessee 38103 —
Meharry Comprehensive Sickle Cell Center Nashville Tennessee 37208 —
Sickle Cell Disease and Hemoglobinopathy Clinic Children's Hospital at Vanderbilt Nashville Tennessee 37232-6310 —
Baylor College of Medicine-Texas Children's Hospital Houston Texas 77030-2399 —
Peninsula Cancer Institute Newport News Virginia 23601 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT01220115, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Dec 9, 2019 · Synced Oct 3, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT01220115 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →