ClinicalTrials.gov record
Completed Not applicable Interventional

Longitudinal Pediatric Palliative Care: Quality of Life & Spiritual Struggle

ClinicalTrials.gov ID: NCT01289444

Public ClinicalTrials.gov record NCT01289444. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced May 8, 2026, 12:27 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Study identification

NCT ID
NCT01289444
Recruitment status
Completed
Study type
Interventional
Phase
Not applicable
Lead sponsor
Maureen Lyon
Other
Enrollment
216 participants

Conditions and interventions

Conditions

Interventions

  • FAmily CEntered (FACE) ACP Behavioral
  • Healthy Living Control Behavioral

Behavioral

Eligibility (public fields only)

Age range
14 Years to 21 Years
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jun 30, 2011
Primary completion
Jun 30, 2014
Completion
Jun 30, 2014
Last update posted
Oct 11, 2021

2011 – 2014

United States locations

U.S. sites
5
U.S. states
3
U.S. cities
4
Facility City State ZIP Site status
Howard University Hospital Washington D.C. District of Columbia 20060
Children's National Medical Center Washington D.C. District of Columbia 22314
Children's Diagnostic & Treatment Center (Broward Health) Fort Lauderdale Florida 33316
Univeristy of Miami Miller School of Medicine Miami Florida 33136
St. Jude Children's Research Hospital Memphis Tennessee 38105

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT01289444, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Oct 11, 2021 · Synced May 8, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT01289444 live on ClinicalTrials.gov.

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