Patients Treated for SCID (1968-Present)
Public ClinicalTrials.gov record NCT01346150. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
A Retrospective and Cross-Sectional Analysis of Patients Treated for SCID Since January 1,1968 (RDCRN PIDTC-6902)
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
Individuals with a past diagnosis of severe combined immune deficiency (including many cases of "leaky SCID", Omenn syndrome, and reticular dysgenesis) who have undergone blood and marrow transplant, gene therapy, or enzyme replacement in the past may be eligible for this study. The purpose of study is to look backwards at what has already been done in the. Over 800 patients with SCID are expected to be enrolled, making this one of the largest studies ever to describe outcomes for patients with SCID treated at many different hospitals around North America.
Study identification
- NCT ID
- NCT01346150
- Recruitment status
- Not listed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 1,007 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- May 15, 2011 (Actual)
- Primary completion
- Aug 2023 (Estimated)
- Completion
- Aug 2023 (Estimated)
- Last update posted
- Nov 12, 2020
2011 – 2023
United States locations
- U.S. sites
- 31
- U.S. states
- 24
- U.S. cities
- 29
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama at Birmingham | Birmingham | Alabama | 35233 | — |
| Children's Hospital Los Angeles | Los Angeles | California | 90027 | — |
| Mattel Children's Hospital UCLA: Division of Pediatric Hematology/Oncology | Los Angeles | California | 90095-1752 | — |
| Lucile Salter Packard Children's Hospital at Stanford | Palo Alto | California | 94305 | — |
| University of California San Francisco Children's Hospital | San Francisco | California | 94143-1278 | — |
| Children's Hospital Denver:Center for Cancer and Blood Disorders | Denver | Colorado | 80220 | — |
| Children's National Medical Center | Washington D.C. | District of Columbia | 20010-2970 | — |
| Johns Hopkins All Children's Hospital | St. Petersburg | Florida | 33701 | — |
| Children's Healthcare of Atlanta/Emory University School of Medicine | Atlanta | Georgia | 30322 | — |
| Lurie Children's Hospital of Chicago | Chicago | Illinois | 60614 | — |
| Children's Hospital/Louisiana State University Health Sciences Center | New Orleans | Louisiana | 70118 | — |
| NIH Clinical Center Genetic Immunotherapy Section | Bethesda | Maryland | 20892 | — |
| Children's Hospital Boston | Boston | Massachusetts | 02115 | — |
| University of Michigan Health System | Ann Arbor | Michigan | 48109 | — |
| University of Minnesota Medical Center | Minneapolis | Minnesota | 55455 | — |
| SSM Cardinal Glennon Children's Medical Center | St Louis | Missouri | 63104 | — |
| Washington University St Louis Children's Hospital | St Louis | Missouri | 63110 | — |
| Hackensack University Medical Center: Department of Pediatrics | Hackensack | New Jersey | 07601 | — |
| Memorial Sloan-Kettering Cancer Center: Department of Pediatrics | New York | New York | 10065 | — |
| Duke University Medical Center: Department of Pediatrics, Division of Allergy/Immunology | Durham | North Carolina | 27710 | — |
| Cincinnati Children's Hospital Medical Center | Cincinnati | Ohio | 45229 | — |
| Oregon Health & Science University: Pediatric Hematology/Oncology | Portland | Oregon | 97239-3098 | — |
| The Children's Hospital of Philadelphia | Philadelphia | Pennsylvania | 19104 | — |
| St. Jude Children's Research Hospital | Memphis | Tennessee | 38105 | — |
| University of Texas Southwestern Medical Center Dallas | Dallas | Texas | 75235 | — |
| Texas Children's Hospital | Houston | Texas | 77030-2399 | — |
| Methodist Children's Hospital of South Texas | San Antonio | Texas | 78229 | — |
| Primary Children's Medical Center/University of Utah | Salt Lake City | Utah | 84113 | — |
| Fred Hutchinson Cancer Research Center: Clinical Research Division and Pediatric Stem Cell Transplantation Center | Seattle | Washington | 98101 | — |
| University of Wisconsin/ American Family Children's Hospital | Madison | Wisconsin | 53705-2275 | — |
| Medical College of Wisconsin | Milwaukee | Wisconsin | 53226-4874 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 5 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT01346150, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Nov 12, 2020 · Synced Oct 25, 2026
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Open the official record
The complete public registry record, listed eligibility criteria, and available contact information for NCT01346150 live on ClinicalTrials.gov.