Longitudinal Study of the Porphyrias
Public ClinicalTrials.gov record NCT01561157. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Study identification
- NCT ID
- NCT01561157
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- The American Porphyrias Expert Collaborative
- Other
- Enrollment
- 1,500 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 1 Minute and older
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Oct 31, 2010
- Primary completion
- Jun 29, 2030
- Completion
- Jun 29, 2030
- Last update posted
- May 14, 2026
2010 – 2030
United States locations
- U.S. sites
- 16
- U.S. states
- 13
- U.S. cities
- 16
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama, Birmingham | Birmingham | Alabama | 35294 | Recruiting |
| University of California, Los Angeles | Los Angeles | California | 90095 | Not yet recruiting |
| University of California, San Francisco | San Francisco | California | 94143 | Recruiting |
| University of Miami | Miami | Florida | 33136 | Recruiting |
| University of Illinois at Chicago | Chicago | Illinois | 60637 | Not yet recruiting |
| Massachusetts General Hospital | Boston | Massachusetts | 02114 | Not yet recruiting |
| University of Minnesota | Minneapolis | Minnesota | 55455 | Recruiting |
| Icahn School of Medicine at Mount Sinai | New York | New York | 10029 | Recruiting |
| Carolinas Medical Center and HealthCare System | Charlotte | North Carolina | 28203 | Terminated |
| Wake Forest University Health Sciences | Winston-Salem | North Carolina | 27106 | Recruiting |
| Cleveland Clinic | Cleveland | Ohio | 44195 | Recruiting |
| Thomas Jefferson University | Philadelphia | Pennsylvania | 19107 | Recruiting |
| University of Texas Medical Branch | Galveston | Texas | 77555 | Recruiting |
| University of Texas Health Science Center at Houston | Houston | Texas | 77030 | Not yet recruiting |
| University of Utah | Salt Lake City | Utah | 84132 | Recruiting |
| University of Washington | Seattle | Washington | 98195 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT01561157, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted May 14, 2026 · Synced May 19, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT01561157 live on ClinicalTrials.gov.