Lysosomal Acid Lipase (LAL) Deficiency Registry
Public ClinicalTrials.gov record NCT01633489. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
An Observational Disease and Clinical Outcomes Registry of Patients With Lysosomal Acid Lipase (LAL) Deficiency
Study identification
- NCT ID
- NCT01633489
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Alexion Pharmaceuticals, Inc.
- Industry
- Enrollment
- 300 participants
Conditions and interventions
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- May 29, 2013
- Primary completion
- Aug 29, 2029
- Completion
- Aug 29, 2029
- Last update posted
- Mar 5, 2026
2013 – 2029
United States locations
- U.S. sites
- 19
- U.S. states
- 14
- U.S. cities
- 17
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Clinical Trial Site | Phoenix | Arizona | 85016 | Recruiting |
| Clinical Trial Site | Stanford | California | 94305 | Recruiting |
| Clinical Trial Site | Miramar | Florida | 33025 | Recruiting |
| Clinical Trial Site | Orlando | Florida | 32806 | Recruiting |
| Clinical Trial Site | Atlanta | Georgia | 30322 | Recruiting |
| Clinical Trial Site | Chicago | Illinois | 60611 | Recruiting |
| Clinical Trial Site | Boston | Massachusetts | 02115 | Recruiting |
| Clinical Trial Site | Detroit | Michigan | 48236 | Recruiting |
| Clinical Trial Site | Minneapolis | Minnesota | 55404 | Recruiting |
| Clinical Trial Site | Jackson | Mississippi | 39216 | Recruiting |
| Clinical Trial Site | Hackensack, NJ, 7601 | New Jersey | 07601 | Recruiting |
| Clinical Trial Site | New York | New York | 10016 | Recruiting |
| Clinical Trial Site | The Bronx | New York | 10467 | Recruiting |
| Clinical Trial Site | Philadelphia | Pennsylvania | 19104-6061 | Recruiting |
| Clinical Trial Site | Philadelphia | Pennsylvania | 19104 | Recruiting |
| Clinical Trial Site | Philadelphia | Pennsylvania | 19107 | Recruiting |
| Clinical Trial Site | Houston | Texas | 77030 | Recruiting |
| Clinical Trial Site | Snyder | Texas | 79549 | Recruiting |
| Clinical Trial Site | Tacoma | Washington | 98405 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 83 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT01633489, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Mar 5, 2026 · Synced Jul 22, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT01633489 live on ClinicalTrials.gov.