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Terminated No phase listed Observational Accepts healthy volunteers

Living With Frontotemporal Dementia

ClinicalTrials.gov ID: NCT01738386

Public ClinicalTrials.gov record NCT01738386. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Jul 22, 2026, 7:21 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Challenges of Living With Frontotemporal Dementia: The Perspective of the Affected Individual

Study identification

NCT ID
NCT01738386
Recruitment status
Terminated
Study type
Observational
Phase
Not listed
Lead sponsor
National Human Genome Research Institute (NHGRI)
NIH
Enrollment
16 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range
18 Years and older
Sex
All
Healthy volunteers
Accepts healthy volunteers

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jun 12, 2012
Primary completion
Not listed
Completion
Feb 23, 2016
Last update posted
Jul 25, 2018

2012 – 2016

United States locations

U.S. sites
3
U.S. states
3
U.S. cities
3
Facility City State ZIP Site status
Johns Hopkins University Baltimore Maryland 21205
Columbia University New York New York 10032-3784
University of Pennsylvania Philadelphia Pennsylvania 19104-6056

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT01738386, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Jul 25, 2018 · Synced Jul 22, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT01738386 live on ClinicalTrials.gov.

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