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Enrolling by invitation No phase listed Observational

Registry of Patients With Hypophosphatasia

ClinicalTrials.gov ID: NCT02306720

Public ClinicalTrials.gov record NCT02306720. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Nov 1, 2026, 8:48 AM EST

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

An Observational, Longitudinal, Prospective, Long-Term Registry Of Patients With Hypophosphatasia (HPP)

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

In this prospective, observational, long term registry patients of all ages with a diagnosis of hypophosphatasia (HPP) are followed at participating sites in multiple countries.

Study identification

NCT ID
NCT02306720
Recruitment status
Enrolling by invitation
Study type
Observational
Phase
Not listed
Lead sponsor
Alexion Pharmaceuticals, Inc.
Industry
Enrollment
1,571 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
Not listed
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jan 20, 2015 (Actual)
Primary completion
Dec 31, 2031 (Estimated)
Completion
Dec 31, 2031 (Estimated)
Last update posted
Sep 4, 2026

2015 – 2031

United States locations

U.S. sites
20
U.S. states
17
U.S. cities
19
Facility City State ZIP Site status
Research Site Centennial Colorado 80112 —
Research Site Hartford Connecticut 06106 —
Research Site Tampa Florida 33606 —
Research Site Decatur Georgia 30033 —
Research Site Baltimore Maryland 21287 —
Research Site Boston Massachusetts 02111 —
Research Site Boston Massachusetts 02115 —
Research Site Minneapolis Minnesota 55454 —
Research Site Kansas City Missouri 64108 —
Research Site St Louis Missouri 63110 —
Research Site Hackensack New Jersey 07601 —
Research Site Mineola New York 11501 —
Research Site Durham North Carolina 27710 —
Research Site Cincinnati Ohio 45229 —
Research Site Columbus Ohio 43205 —
Research Site Pittsburgh Pennsylvania 15224 —
Research Site Nashville Tennessee 37212 —
Research Site Salt Lake City Utah 84112 —
Research Site Charlottesville Virginia 22903 —
Research Site Madison Wisconsin 53792 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 46 non-U.S. sites.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT02306720, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Sep 4, 2026 · Synced Nov 1, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT02306720 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →