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Terminated No phase listed Observational

INSIGHT-AHP: A Study to Characterize the Prevalence of Acute Hepatic Porphyria (AHP) in Patients With Clinical Presentation and History Consistent With AHP

ClinicalTrials.gov ID: NCT03547297

Public ClinicalTrials.gov record NCT03547297. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Oct 19, 2026, 3:37 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

This study will use specific diagnostic tests on a group of patients who are experiencing symptoms typical of acute hepatic porphyria (AHP) to determine how many have the condition, and to potentially help improve the diagnostic process for patients in the future.

Study identification

NCT ID
NCT03547297
Recruitment status
Terminated
Study type
Observational
Phase
Not listed
Lead sponsor
Alnylam Pharmaceuticals
Industry
Enrollment
212 participants

Conditions and interventions

Eligibility (public fields only)

Age range
16 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
May 29, 2018 (Actual)
Primary completion
Jan 15, 2019 (Actual)
Completion
Jan 15, 2019 (Actual)
Last update posted
Jan 25, 2019

2018 – 2019

United States locations

U.S. sites
12
U.S. states
10
U.S. cities
12
Facility City State ZIP Site status
Clinical Trial Site Pasadena California 91101 —
Clinical Trial Site Jacksonville Florida 32256 —
Clinical Trial Site Margate Florida 33063 —
Clinical Trial Site Ames Iowa 50010 —
Clinical Trial Site Las Vegas Nevada 89106 —
Clinical Trial Site Manhasset New York 11030 —
Clinical Trial Site Winston-Salem North Carolina 27103 —
Clinical Trial Site Pittsburgh Pennsylvania 15232 —
Clinical Trial Site Pottsville Pennsylvania 17901 —
Clinical Trial Site Knoxville Tennessee 37912 —
Clinical Trial Site Houston Texas 77025 —
Clinical Trial Site Salt Lake City Utah 84124 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT03547297, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Jan 25, 2019 · Synced Oct 19, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT03547297 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →