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Active, not recruiting Phase 3 Interventional

Long-term Safety and Efficacy Study of Fitusiran in Patients With Hemophilia A or B, With or Without Inhibitory Antibodies to Factor VIII or IX

ClinicalTrials.gov ID: NCT03754790

Public ClinicalTrials.gov record NCT03754790. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Sep 2, 2026, 6:27 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

An Open-label, Long-term Safety and Efficacy Study of Fitusiran in Patients With Hemophilia A or B, With or Without Inhibitory Antibodies to Factor VIII or IX

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

Primary Objective: To characterize the long-term safety and tolerability of fitusiran Secondary Objectives: * To characterize the efficacy and long-term efficacy of fitusiran as assessed by the frequency of: * Bleeding episodes * Spontaneous bleeding episodes * Joint bleeding episodes * To characterize the effects of fitusiran on health-related quality of life (HRQOL) measures in participants ≥17 years of age

Study identification

NCT ID
NCT03754790
Recruitment status
Active, not recruiting
Study type
Interventional
Phase
Phase 3
Lead sponsor
Genzyme, a Sanofi Company
Industry
Enrollment
281 participants

Conditions and interventions

Conditions

Interventions

Drug

Eligibility (public fields only)

Age range
12 Years and older
Sex
Male
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jan 8, 2019
Primary completion
Nov 4, 2026
Completion
Nov 4, 2026
Last update posted
Dec 16, 2025

2019 – 2026

United States locations

U.S. sites
10
U.S. states
8
U.S. cities
10
Facility City State ZIP Site status
Phoenix Childrens Hospital Site Number : 8400009 Phoenix Arizona 85016
Children's Hospital Los Angeles Site Number : 8400019 Los Angeles California 90027
Center for Inherited Blood Disorders (CIBD) Site Number : 8400016 Orange California 92868
Nemours Children's Clinic Site Number : 8400008 Jacksonville Florida 32207
St Joseph's Children's Hospital of Tampa Site Number : 8400002 Tampa Florida 33607
Rush University Medical Center -1725 W Harrison St Site Number : 8400001 Chicago Illinois 60612-3863
~Massachusetts General Hospital Site Number : 8400011 Boston Massachusetts 02114
University of Michigan Hospital - 1500 E Medical Center Dr Site Number : 8400012 Ann Arbor Michigan 48109-5000
Alliance for Childhood Diseases Site Number : 8400007 Las Vegas Nevada 89135-3011
Childrens Hospital Medical Center of Akron Site Number : 8400006 Akron Ohio 44308

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 69 non-U.S. sites.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT03754790, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Dec 16, 2025 · Synced Sep 2, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT03754790 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →