ATHN 8: Previously Untreated Patients (PUPs) Matter Study
Public ClinicalTrials.gov record NCT03818529. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
US Cohort Study of Previously Untreated Patients (PUPs) With Congenital Hemophilia
Study identification
- NCT ID
- NCT03818529
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- American Thrombosis and Hemostasis Network
- Network
- Enrollment
- 237 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 0 Years to 13 Years
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Oct 2, 2018
- Primary completion
- Jan 25, 2022
- Completion
- Dec 30, 2022
- Last update posted
- Jan 31, 2023
2018 – 2022
United States locations
- U.S. sites
- 27
- U.S. states
- 20
- U.S. cities
- 27
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Arizona Hemophilia and Thrombosis Center at Phoenix Children's Hospital | Phoenix | Arizona | 85016 | — |
| Valley Children's Hospital | Madera | California | 93636 | — |
| Rady Children's Hospital San Diego | San Diego | California | 92123 | — |
| UCSF Pediatric Hemophilia Treatment Center at Mission Bay | San Francisco | California | 94158 | — |
| University of Colorado Denver Hemophilia and Thrombosis Center | Aurora | Colorado | 80045 | — |
| Connecticut Bleeding and Clotting Disorders Center | Farmington | Connecticut | 06030 | — |
| Children's National Medical Center | Washington D.C. | District of Columbia | 20010 | — |
| Johns Hopkins All Children's Hospital | St. Petersburg | Florida | 33701 | — |
| Children's Healthcare of Atlanta/Emory | Atlanta | Georgia | 30322 | — |
| Augusta University Hemophilia Treatment Center | Augusta | Georgia | 30912 | — |
| Rush University Medical Center | Chicago | Illinois | 60612 | — |
| Indiana Hemophilia and Thrombosis Center (IHTC) | Indianapolis | Indiana | 46260 | — |
| Kansas City Regional Hemophilia Center | Kansas City | Kansas | 64108 | — |
| Maine Hemophilia and Thrombosis Center | Scarborough | Maine | 04074 | — |
| Boston Hemophilia Center at Children's Hospital of Boston | Boston | Massachusetts | 02115 | — |
| University of Michigan Hemophilia and Coagulation Disorders | Ann Arbor | Michigan | 48109 | — |
| Mayo Comprehensive Hemophilia Center | Rochester | Minnesota | 55905 | — |
| Cincinnati Children's Hospital Medical Center, Hemophilia & Thrombosis Center | Cincinnati | Ohio | 45229 | — |
| UHHS Cleveland | Cleveland | Ohio | 44106 | — |
| Northwest Ohio Hemophilia Treatment Center at the Toledo Hospital | Toledo | Ohio | 43606 | — |
| Oklahoma Center for Bleeding and Clotting Disorders | Oklahoma City | Oklahoma | 73104 | — |
| Oregon Health and Science University | Portland | Oregon | 97239 | — |
| St Jude Children's Research Hospital | Memphis | Tennessee | 38105 | — |
| Vanderbilt University Medical Center | Nashville | Tennessee | 37212 | — |
| Utah Center for Bleeding & Clotting Disorders at Primary Children's Hospital | Salt Lake City | Utah | 84113 | — |
| Hemophilia Outreach Center | Green Bay | Wisconsin | 54311 | — |
| Blood Center of Wisconsin | Milwaukee | Wisconsin | 53201 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT03818529, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jan 31, 2023 · Synced Jul 22, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT03818529 live on ClinicalTrials.gov.