ATHN 9: Severe VWD Natural History Study
Public ClinicalTrials.gov record NCT03853486. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
ATHN 9: A Natural History Cohort Study of the Safety, Effectiveness, and Practice of Treatment for People With Severe Von Willebrand Disease (VWD)
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
ATHN 9 is a natural history study to assess the safety of various Von Willebrand Factor (VWF) regimens for different indications (on-demand, surgery and prophylaxis) in adult and pediatric participants with clinically severe congenital VWD.
Study identification
- NCT ID
- NCT03853486
- Recruitment status
- Completed
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 108 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Not listed
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Jun 18, 2019 (Actual)
- Primary completion
- Jun 12, 2026 (Actual)
- Completion
- Jun 26, 2026 (Actual)
- Last update posted
- Jul 13, 2026
2019 – 2026
United States locations
- U.S. sites
- 22
- U.S. states
- 17
- U.S. cities
- 22
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Center for Inherited Blood Disorders | Orange | California | 92868 | — |
| University of Colorado Denver Hemophilia and Thrombosis Center | Aurora | Colorado | 80045 | — |
| Connecticut Bleeding and Clotting Disorders Center | Farmington | Connecticut | 06030 | — |
| University of Florida Hemophilia Treatment Center | Gainesville | Florida | 32610 | — |
| Children's Healthcare of Atlanta/Emory | Atlanta | Georgia | 30322 | — |
| Bleeding and Clotting Disorders Institute | Peoria | Illinois | 61615 | — |
| Indiana Hemophilia and Thrombosis Center (IHTC) | Indianapolis | Indiana | 46260 | — |
| Louisiana Center for Bleeding and Clotting Disorders | New Orleans | Louisiana | 70112 | — |
| University of Michigan Hemophilia and Coagulation Disorders | Ann Arbor | Michigan | 48109 | — |
| Children's Hospital of Michigan Hemostasis and Thrombosis Center | Detroit | Michigan | 48201 | — |
| Michigan State University Center for Bleeding and Clotting Disorders | East Lansing | Michigan | 48823 | — |
| Mayo Comprehensive Hemophilia Center | Rochester | Minnesota | 55905 | — |
| Washington University Center for Treatment of Bleeding and Blood Clotting Disorders | St Louis | Missouri | 63110 | — |
| Nationwide Children's Hospital Columbus | Columbus | Ohio | 43205 | — |
| Oregon Health | Portland | Oregon | 91239 | — |
| Pennsylvania Comprehensive Hemophilia and Thrombophilia Program / Hospital of the University of Pennsylvania | Philadelphia | Pennsylvania | 19104 | — |
| Hemophilia Center of Western Pennsylvania | Pittsburgh | Pennsylvania | 15213 | — |
| Rhode Island Hemostasis & Thrombosis Center | Providence | Rhode Island | 02903 | — |
| University of Tennessee, University Clinical Health (Memphis) | Memphis | Tennessee | 38119 | — |
| Vanderbilt University Medical Center | Nashville | Tennessee | 37212 | — |
| Hemophilia Outreach Center | Green Bay | Wisconsin | 54311 | — |
| Versiti - Blood Center of Wisconsin | Milwaukee | Wisconsin | 53201 | — |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT03853486, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jul 13, 2026 · Synced Oct 4, 2026
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Open the official record
The complete public registry record, listed eligibility criteria, and available contact information for NCT03853486 live on ClinicalTrials.gov.