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Completed No phase listed Observational

Clinical Evaluation and Assessment of Instruments and Biomarkers in Subjects With Wilson Disease

ClinicalTrials.gov ID: NCT04531189

Public ClinicalTrials.gov record NCT04531189. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Oct 22, 2026, 8:43 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

The primary objective of the study is to determine the relevance and appropriateness of outcome assessments, including biomarkers, within the Wilson disease population to inform study design and endpoint selection for future clinical studies.

Study identification

NCT ID
NCT04531189
Recruitment status
Completed
Study type
Observational
Phase
Not listed
Lead sponsor
Ultragenyx Pharmaceutical Inc
Industry
Enrollment
16 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range
12 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Dec 11, 2020 (Actual)
Primary completion
Mar 25, 2022 (Actual)
Completion
Mar 25, 2022 (Actual)
Last update posted
Apr 29, 2022

2020 – 2022

United States locations

U.S. sites
5
U.S. states
5
U.S. cities
5
Facility City State ZIP Site status
Yale University School of Medicine New Haven Connecticut 06510 —
Jackson Memorial Hospital Miami Transplant Unit University of Miami Miller School of Medicine Miami Florida 33136 —
Northwestern University Feinberg School of Medicine Chicago Illinois 60611 —
University of Michigan Michigan Medicine Hepatology Clinic Taubman Center Ann Arbor Michigan 48109 —
Seattle Children's Hospital Seattle Washington 98105 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 1 non-U.S. site.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT04531189, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Apr 29, 2022 · Synced Oct 22, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT04531189 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →