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Active, not recruiting No phase listed Observational

REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients

ClinicalTrials.gov ID: NCT04687358

Public ClinicalTrials.gov record NCT04687358. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Oct 23, 2026, 1:51 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Registry of the Natural History of Recurrent Pericarditis in Pediatric and Adult Patients

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.

Study identification

NCT ID
NCT04687358
Recruitment status
Active, not recruiting
Study type
Observational
Phase
Not listed
Enrollment
500 participants

Conditions and interventions

Interventions

Not listed

Eligibility (public fields only)

Age range
7 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Mar 16, 2021 (Actual)
Primary completion
Mar 2029 (Estimated)
Completion
Mar 2029 (Estimated)
Last update posted
Feb 17, 2026

2021 – 2029

United States locations

U.S. sites
29
U.S. states
21
U.S. cities
26
Facility City State ZIP Site status
Alaska Heart & Vascular Institute Anchorage Alaska 99508 —
Pima Heart and Vascular Tucson Arizona 85718 —
University of California San Diego Medical Center La Jolla California 92093 —
Cedars-Sinai Medical Center Los Angeles California 90048 —
Scripps Health San Diego California 92037 —
Northwestern University Chicago Illinois 60611 —
Midwest Cardiovascular Research Foundation Davenport Iowa 52801 —
Johns Hopkins University Baltimore Maryland 21218 —
Massachusetts General Hospital Boston Massachusetts 02114 —
Brigham and Women's Hospital Boston Massachusetts 02115 —
Detroit Medical Center Detroit Michigan 48201 —
Minneapolis Heart Institute Foundation Minneapolis Minnesota 55407 —
Mayo Clinic - PPDS Rochester Minnesota 55905 —
Barnes-Jewish Hospital/Washington University St Louis Missouri 63110 —
University of Nebraska Omaha Nebraska 68198 —
TKL Research Inc. Fair Lawn New Jersey 07410 —
NYU Langone Health New York New York 10016 —
Northwell Health - Lenox Hill Hospital New York New York 10075 —
The Linder Research Center at The Christ Hospital Cincinnati Ohio 45219 —
Cleveland Clinic Cleveland Ohio 44106 —
Legacy Medical Group, Cardiology Portland Oregon 97227 —
Carnegie Mellon University, Allegheny Health Network, Allegheny General Hospital Pittsburgh Pennsylvania 15212 —
University of Texas Southwestern Medical Center Dallas Texas 75390 —
Houston Methodist Hospital Houston Texas 77030 —
University of Utah Salt Lake City Utah 84132 —
University of Vermont Medical Center Burlington Vermont 05405 —
Virginia Commonwealth University Richmond Virginia 23298 —
Seattle Children's Hospital Seattle Washington 98105 —
Swedish Medical Center - Cherry Hill Seattle Washington 98122 —

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT04687358, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Feb 17, 2026 · Synced Oct 23, 2026

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Open the official record

The complete public registry record, listed eligibility criteria, and available contact information for NCT04687358 live on ClinicalTrials.gov.

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