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Completed No phase listed Observational

Assessment of Patterns of Patient Reported Outcomes in Adults With Congenital Heart Disease - International Study II

ClinicalTrials.gov ID: NCT04902768

Public ClinicalTrials.gov record NCT04902768. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Sep 1, 2026, 9:45 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

APPROACH-IS II: Assessment of Patterns of Patient Reported Outcomes in Adults With Congenital Heart Disease - International Study II

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

This is an international, cross-sectional and descriptive study that aims to investigate differences in patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) and that aims to explore the profile and healthcare needs of adults with congenital heart diseases.

Study identification

NCT ID
NCT04902768
Recruitment status
Completed
Study type
Observational
Phase
Not listed
Lead sponsor
KU Leuven
Other
Enrollment
8,415 participants

Conditions and interventions

Eligibility (public fields only)

Age range
18 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Jul 31, 2019
Primary completion
Aug 30, 2022
Completion
Dec 30, 2022
Last update posted
May 15, 2024

2019 – 2022

United States locations

U.S. sites
10
U.S. states
9
U.S. cities
10
Facility City State ZIP Site status
University of California San Francisco California 92093-0021
Lucile Packard Children's Hospital and Stanford Health Care Stanford California 94304
University of Florida Health Gainesville Florida 32611
Taussig Heart Center of Johns Hopkins Hospital Baltimore Maryland 21287
Boston Children's / Brigham and Women's Boston Massachusetts 02115
Mount Sinai Heart New York New York 10029
Nationwide Children's Hospital Columbus Ohio 43205
Oregon Health and Science University Portland Oregon 97239
Philadelphia Penn Medicine Philadelphia Pennsylvania 19104
University of Southwestern Medical Center Dallas Texas 75390

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 43 non-U.S. sites.

Recently updated Congenital Heart Disease trials

Other public records listing Congenital Heart Disease. Sorted by last update posted; newest first. Not a recommendation.

All Congenital Heart Disease trials →

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT04902768, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted May 15, 2024 · Synced Sep 1, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT04902768 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →