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Active, not recruiting No phase listed Observational

Long-Term Follow-up of Subjects Who Were Treated With ST-920

ClinicalTrials.gov ID: NCT05039866

Public ClinicalTrials.gov record NCT05039866. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

ClinicalTrials.gov public records Last synced Sep 3, 2026, 2:43 AM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

Long-Term Follow-up of Fabry Disease Subjects Who Were Treated With ST-920, an AAV2/6 Human Alpha Galactosidase A Gene Therapy

Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

Long-term follow-up of subjects who received ST-920 in a previous trial (ST-920-201) and completed at least 52 weeks post-infusion follow-up in their primary protocol. Enrolled subjects will be followed for a total of up to 5 years following ST-920 infusion.

Study identification

NCT ID
NCT05039866
Recruitment status
Active, not recruiting
Study type
Observational
Phase
Not listed
Lead sponsor
Sangamo Therapeutics
Industry
Enrollment
32 participants

Conditions and interventions

Interventions

Biological

Eligibility (public fields only)

Age range
18 Years and older
Sex
All
Healthy volunteers
Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date
Aug 15, 2021
Primary completion
Feb 28, 2029
Completion
Feb 28, 2039
Last update posted
Aug 19, 2026

2021 – 2039

United States locations

U.S. sites
8
U.S. states
8
U.S. cities
8
Facility City State ZIP Site status
University of California, Irvine Irvine California 92697
University of South Florida Tampa Florida 33620
Emory University School of Medicine Atlanta Georgia 30322
University of Iowa Hospital and Clinics Iowa City Iowa 52242
University of Minnesota Medical Center Minneapolis Minnesota 55455
Mt. Sinai Hospital New York New York 10029
Cincinnati Children's Hospital Medical Center Cincinnati Ohio 45229
Lysosomal & Rare Disorders Research & Treatment Center (LDRTC) Fairfax Virginia 22030

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 5 non-U.S. sites.

About this trial record page

What this page shows
Public field values for ClinicalTrials.gov record NCT05039866, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do
No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from
Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh
Last update posted Aug 19, 2026 · Synced Sep 3, 2026

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Open the official record

The complete protocol, eligibility criteria, and contact information for NCT05039866 live on ClinicalTrials.gov.

View official ClinicalTrials.gov record →