Natural History Study in Pediatric Patients With MYBPC3 Mutation-associated Cardiomyopathy

ClinicalTrials.gov ID: NCT05112237

Public ClinicalTrials.gov record NCT05112237. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced Jul 21, 2026, 6:03 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Official title

A Prospective and Retrospective Registry and Biomarker Study to Evaluate the Natural History of Pediatric Patients With Cardiomyopathy Due to MYBPC3 Mutations

Study identification

NCT ID: NCT05112237
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: Tenaya Therapeutics; Industry
Enrollment: 200 participants

Conditions and interventions

Conditions

Cardiomyopathy

Interventions

Not listed

Eligibility (public fields only)

Age range: 0 Years to 18 Years
Sex: All
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Oct 31, 2021
Primary completion: May 31, 2028
Completion: May 31, 2028
Last update posted: Nov 12, 2024

2021 – 2028

United States locations

U.S. sites: 21
U.S. states: 10
U.S. cities: 20

Facility	City	State	ZIP	Site status
Arkansas Children's Hospital	Little Rock	Arkansas	72202	Recruiting
Children's Hospital Los Angeles	Los Angeles	California	90027	Recruiting
University of California Davis Health	Sacramento	California	95817	Recruiting
Rady Children's Hospital - San Diego	San Diego	California	92123	Recruiting
University of Colorado Hospital - Anschutz Medical Campus	Aurora	Colorado	80045	Recruiting
Nemours Alfred I. Dupont Hospital for Children	Wilmington	Delaware	19803	Recruiting
Joe DiMaggio Children's Hospital	Hollywood	Florida	33021	Recruiting
Children's Mercy Hospital Kansas	Kansas City	Missouri	64108	Recruiting
St. Louis Children's Hospital	St Louis	Missouri	63110	Recruiting
Cohen Children's Medical Center	Lake Success	New York	11042	Recruiting
Mount Sinai	New York	New York	10029	Recruiting
Columbia University Irving Medical Center	New York	New York	10032	Recruiting
Montefiore Medical Center, Albert Einstein College of Medicine	The Bronx	New York	10467	Recruiting
Cincinnati Children's Hospital Medical Center	Cincinnati	Ohio	45229	Recruiting
Cleveland Clinic Main Campus	Cleveland	Ohio	44195	Recruiting
DDC Clinic Center for Special Needs Children	Middlefield	Ohio	44062	Recruiting
Cardiology Care for Children	Lancaster	Pennsylvania	17601	Recruiting
Children's Hospital of Philadelphia	Philadelphia	Pennsylvania	19104	Recruiting
University of Pittsburgh Medical Center - Children's Hospital of Pittsburgh	Pittsburgh	Pennsylvania	15224	Recruiting
Children's Medical Center Dallas	Dallas	Texas	75207	Recruiting
Texas Children's Hospital	Houston	Texas	77030	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 8 non-U.S. sites.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT05112237, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Nov 12, 2024 · Synced Jul 21, 2026

Open the official record

The complete protocol, eligibility criteria, and contact information for NCT05112237 live on ClinicalTrials.gov.

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