Rett Syndrome Registry
Public ClinicalTrials.gov record NCT05432349. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
Rett Syndrome Real World Data Observational Registry
Study identification
- NCT ID
- NCT05432349
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- International Rett Syndrome Foundation
- Other
- Enrollment
- 3,000 participants
Conditions and interventions
Eligibility (public fields only)
- Age range
- 0 Years to 99 Years
- Sex
- All
- Healthy volunteers
- Not listed
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Aug 1, 2022
- Primary completion
- Jun 30, 2027
- Completion
- Jun 30, 2028
- Last update posted
- Jan 10, 2023
2022 – 2028
United States locations
- U.S. sites
- 18
- U.S. states
- 15
- U.S. cities
- 18
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| University of Alabama | Birmingham | Alabama | 35233 | Recruiting |
| Children's Hospital Los Angeles | Los Angeles | California | 90027 | Not yet recruiting |
| UCSF Benioff Children's Hospital | Oakland | California | 94609 | Recruiting |
| Children's Hospital Colorado | Denver | Colorado | 80045 | Recruiting |
| Rush University Medical Center | Chicago | Illinois | 60612 | Recruiting |
| Kennedy Krieger Institute | Baltimore | Maryland | 21205 | Recruiting |
| Boston Children's Hospital | Boston | Massachusetts | 02115 | Recruiting |
| Gillette Children's Specialty Healthcare | Saint Paul | Minnesota | 55101 | Recruiting |
| Washington University in St. Louis | St Louis | Missouri | 63110 | Recruiting |
| The Children's Hospital at Montefiore | The Bronx | New York | 10467 | Recruiting |
| The University of North Carolina at Chapel Hill | Chapel Hill | North Carolina | 27517 | Not yet recruiting |
| Cincinnati Children's Hospital Medical Center | Cincinnati | Ohio | 45229 | Not yet recruiting |
| Nationwide Children's Hospital | Columbus | Ohio | 43205 | Not yet recruiting |
| Children's Hospital of Philadelphia | Philadelphia | Pennsylvania | 19104 | Recruiting |
| Greenwood Genetic Center | Greenwood | South Carolina | 29646 | Recruiting |
| Vanderbilt Kennedy Center | Nashville | Tennessee | 37232 | Recruiting |
| Children's Health | Dallas | Texas | 75207 | Recruiting |
| Texas Children's Hospital | Houston | Texas | 77030 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT05432349, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Jan 10, 2023 · Synced Apr 22, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT05432349 live on ClinicalTrials.gov.