Epilepsy Learning Healthcare System (ELHS)
Public ClinicalTrials.gov record NCT06265103. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Official title
Epilepsy Learning Healthcare System (ELHS) for Quality Care & Outcome Improvement
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.
Study identification
- NCT ID
- NCT06265103
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 100,000 participants
Conditions and interventions
Conditions
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Mar 19, 2019
- Primary completion
- Feb 13, 2099
- Completion
- Feb 13, 2099
- Last update posted
- Aug 29, 2024
2019 – 2099
United States locations
- U.S. sites
- 13
- U.S. states
- 8
- U.S. cities
- 10
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Barrow Neurological Institute Comprehensive Epilepsy Center | Phoenix | Arizona | 85013 | Recruiting |
| Children's Hospital Los Angeles | Los Angeles | California | 90027 | Not yet recruiting |
| University of Southern California | Los Angeles | California | 90032 | Recruiting |
| UC Health University of Colorado Anshutz | Aurora | Colorado | 80045 | Recruiting |
| Epilepsy Foundation | Bowie | Maryland | 20716 | Recruiting |
| Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH) | Boston | Massachusetts | 02114 | Recruiting |
| Brigham & Women's Hospital | Boston | Massachusetts | 02115 | Recruiting |
| Akron Children's Hospital | Akron | Ohio | 44308 | Not yet recruiting |
| Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC) | Cincinnati | Ohio | 45229 | Not yet recruiting |
| University of Cincinnati Gardner Neuroscience Institute Epilepsy Center | Cincinnati | Ohio | 45267 | Recruiting |
| Penn State Hershey | Hershey | Pennsylvania | 17033 | Recruiting |
| Children's Hospital of Philadelphia (CHOP) | Philadelphia | Pennsylvania | 19104 | Recruiting |
| UT Southwestern Children's Dallas | Dallas | Texas | 75063 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT06265103, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Aug 29, 2024 · Synced Sep 2, 2026
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Open the official record
The complete protocol, eligibility criteria, and contact information for NCT06265103 live on ClinicalTrials.gov.