FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases
Public ClinicalTrials.gov record NCT06539169. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Study identification
- NCT ID
- NCT06539169
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- xCures
- Industry
- Enrollment
- 1,000 participants
Conditions and interventions
Conditions
- Alpha-Thalassemia
- Amyloidosis
- Amyotrophic Lateral Sclerosis
- Beta-Thalassemia
- Creutzfeld-Jakob Disease
- Cystic Fibrosis
- Duchenne Muscular Dystrophy
- Early-Onset Alzheimer Disease
- Ehlers-Danlos Syndrome
- GM1 Gangliosidosis
- Gaucher Disease
- Huntington Disease
- Myasthenia Gravis
- Pompe Disease
- Rare Diseases
- Sickle Cell Disease
- Transthyretin Amyloid Cardiomyopathy
Interventions
Not listed
Eligibility (public fields only)
- Age range
- Not listed
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Jun 9, 2024
- Primary completion
- Jun 9, 2026
- Completion
- Jun 9, 2026
- Last update posted
- Nov 13, 2024
2024 – 2026
United States locations
- U.S. sites
- 1
- U.S. states
- 1
- U.S. cities
- 1
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| xCures | Los Altos | California | 94022 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT06539169, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Nov 13, 2024 · Synced May 7, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT06539169 live on ClinicalTrials.gov.